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Abstrak :
Latar belakang: Hemofilia merupakan penyakit kronis yang dapat memengaruhi aspek psikososial penderitanya. Gangguan psikososial yang mungkin dialami adalah gangguan tidur serta gangguan emosi dan perilaku. Penelitian ini bertujuan untuk menilai gangguan tidur, gangguan emosi dan perilaku, dan hubungan keduanya pada pasien anak dengan Hemofilia. Metode: Penelitian potong lintang dilakukan pada pasien anak dengan hemofilia di poli hematologi anak RSUPN Dr. Cipto Mangunkusumo dari November 2022-Januari 2023. Penilaian gangguan tidur dilakukan melalui kuesioner the Sleep Disturbance Scale for Children (SDSC) berbahasa Indonesia. sedangkan gangguan emosi dan perilaku dinilai berdasarkan kuesioner Pediatric Symptom Checklist-17 (PSC-17) berbahasa Indonesia, Analisis hubungan antara keduanya dinilai melalui uji Fisher. Hasil: Terdapat 43 pasien anak laki-laki dengan hemofilia dalam periode penelitian. Gangguan tidur terdapat pada 19/43 (44,2%). Gangguan emosi dan perilaku terdapat 5/43 (11,6%). Hubungan gangguan tidur dengan gangguan emosi perilaku menunjukkan nilai p sebesar 0,387 (Hasil uji Fisher). Kesimpulan: Hubungan gangguan tidur dengan gangguan emosi dan perilaku pada pasien anak dengan hemofilia tidak dapat disimpulkan. ......Introduction: Hemophilia is a chronic disease that can affect the psychosocial aspects of sufferers. Psychosocial disorders that may be experienced are sleep disturbances and so emotional and behavioral disorders. This study aims to assess sleep disturbances, emotional and behavioral disorders, and the relationship between the two in pediatric patients with Hemophilia. Method: This cross-sectional study involved pediatric patients with hemophilia at RSUPN Dr. Cipto Mangunkusumo. Assessment of sleep disturbances was carried out through the Sleep Disturbance Scale for Children (SDSC) questionnaire, while emotional and behavioral disorders were assessed using the Pediatric Symptom Checklist-17 questionnaire (PSC-17). Those questionnaires had already validated in Indonesian. The analysis of the relationship between the two was assessed through Fisher's test. Result: There were 43 male pediatric patients with hemophilia in this study. It showed that 19/43 (44.2%) of pediatric patients with hemophilia experienced sleep disturbances. In addition, there were 5/43 (11.6%) of patients who had emotional and behavioral disorders. Fisher's test results showed p value=0.387. Conclusion: Thus, the relationship between sleep disturbances and emotional and behavioral disturbances in pediatric patients with hemophilia can not be concluded.

Abstrak :
End-stage kidney disease (ESKD) pada anak berdampak tidak terbatas pada aspek kesehatan fisik, tetapi juga perubahan emosi dan perilaku. Namun, kondisi ini seringkali diabaikan. Di Indonesia, data mengenai gangguan emosi dan perilaku khususnya pada pasien ESKD anak yang menjalani hemodialisis (HD) jumlahnya pun terbatas. Studi potong lintang ini dilakukan untuk mengetahui prevalensi, jenis gangguan, dan asosiasi faktor-faktor yang berhubungan terhadap gangguan emosi dan perilaku pada pasien ESKD anak yang menjalani HD. Total 28 pasien ESKD anak di RSCM usia 4-18 tahun yang menjalani hemodialisis minimal 1 bulan diikutkan dalam penelitian. Skrining gangguan emosi dan perilaku diukur menggunakan PSC-17. Analisis bivariat dilakukan menggunakan uji Chi-Square/Fisher. Studi ini menemukan prevalensi gangguan emosi dan perilaku pada pasien ESKD anak yang menjalani HD di RSCM sebesar 32%, dengan persentase abnormal tertinggi pada subskala internalisasi (21,4%). Variabel jenis kelamin menunjukkan hubungan signifikan (p<0,05) terhadap gangguan emosi dan perilaku. ......Children with end-stage kidney disease (ESKD) have behavioral and emotional difficulties in addition to physical health problems. But this condition is frequently disregarded. Data on emotional and behavioral issues among pediatric ESKD patients in Indonesia, especially those receiving hemodialysis (HD), is still scarce. The purpose of this cross-sectional study is to identify the prevalence, type, and correlation of variables associated with emotional and behavioral issues in pediatric hemodialysis patients. There were a total of 28 pediatric ESKD patients at RSCM, ages 4 to 18, who received hemodialysis treatment for at least one month included in this study. The children were screened for emotional and behavioral problems using PSC-17 questionnaire. Bivariate analysis was measured using Chi-Square/ Fisher test. This study discovered the prevalence of behavioral and emotional issues in children with ESKD receiving HD in RSCM is 32%, high proportion found in internalization subscale (21.4%). The risk of emotional and behavioral issues was shown to be significantly correlated with gender (p<0.05).

Abstrak :
xLatar belakang: Kejadian leukemia akut sebagai kanker tersering pada anak terus meningkat setiap tahun menjadi penyebab morbiditas dan mortalitas tertinggi akibat penyakit. Umumnya, leukemia akut menyerang anak berusia <15 tahun dan remaja. Terapi definitif (kemoterapi) yang lama dan tidak menyenangkan berisiko dalam mengembangkan gangguan emosi dan perilaku pada anak. Di lain sisi, kehidupan pascapandemi juga turut meningkatkan penggunaan gawai pada kaum remaja yang turut berperan dalam terjadinya gangguan emosi dan perilaku. Penelitian ini bertujuan untuk mengetahu hubungan antara screen-time dengan gangguan emosi dan perilaku pada remaja leukemia. Metode: Desain penelitian ini adalah potong lintang yang dilakukan di Poli Hematoonkologi Anak RSUPN Dr. Cipto Mangunkusumo pada bulan November 2022. Penelitian ini menggunakan instrumen data screen-time dan kuesioner PSC-17. Analisis dilakukan secara univariat dan bivariat menggunakan aplikasi SPSS versi 24. Hasil: Jumlah remaja leukemia di RSCM 23 orang, tersebar merata secara usia, didominasi anak laki-laki (13/23), jenis leukemia LLA (22/23), tingkat pendidikan anak SD (12/23), tingkat pendidikan ayah dan ibu menengah (11/23; 9/23), pendapatan keluarga < UMP DKI Jakarta (10/23), dan seluruhnya mendapat dukungan emosional keluarga. Nilai median usia dan durasi sakit (bulan) adalah 12,94 (10,05-17,18) tahun dan 16 (0,83-96) bulan. Tingkat screen-time sebagian besar >2 jam/hari (22/23) dengan penggunaan terlama >6 jam/hari (12/23) dan rerata 6.5 ± 3,25 jam/hari, serta digunakan untuk hiburan. Gangguan Emosi dan Perilaku terjadi pada 2/23 orang yaitu gangguan internalisasi (1) dan gangguan eksternalisasi (1). Hubungan antara screen-time dengan gangguan emosi dan perilaku tidak dapat disimpulkan. Kesimpulan: Tingkat screen-time yang tinggi pada remaja leukemia perlu diedukasi kepada orangtua dan remaja, serta 2 orang pasien dengan gangguan emosi dan perilaku perlu diperiksa lebih lanjut. ......Background: The incidence of acute leukemia, the most common cancer in children, continues to increase yearly, becoming the highest cause of morbidity and mortality due to disease. Generally, acute leukemia attacks children aged <15 years and adolescents. Long and unpleasant definitive therapy (chemotherapy) is at risk of developing emotional and behavioral disorders in children. On the other hand, post-pandemic life has also increased the use of gadgets among adolescents, contributing to emotional and behavioral disorders. This study aims to determine the relationship between screen time and emotional and behavioural disorders in leukaemic adolescents. Methods: The design of this study was a cross-sectional study conducted at the Children's Hematooncology Polyclinic at RSUPN Dr. Cipto Mangunkusumo in November 2022. This study used screen-time data instruments and the PSC-17 questionnaire. The analysis was carried out univariate and bivariate using the SPSS version 24 application. Results: The number of leukemia adolescents in RSCM was 23 people, evenly distributed by age, dominated by boys (13/23), type of leukemia ALL (22/23), education level of children SD (12/23), middle education level of father and mother (11/23; 9/23), family income < UMP DKI Jakarta (10/23), and all of them received family emotional support. The median values for age and illness duration (months) were 12.94 (10.05-17.18) and 16 (0.83-96). The screen-time level is mostly >2 hours/day (22/23), with the most frequent use being >6 hours/day (12/23) and an average of 6.5 ± 3.25 hours/day, and it is used for entertainment. Emotional and behavioral disorders occur in 2/23 people, namely internalization disorders (1) and externalization disorders (1). The relationship between screen time and emotional and behavioral disorders is inconclusive. Conclusion: The high level of screen time in adolescents with leukemia needs to be educated to parents and adolescents, and two patients with emotional and behavioral disorders need to be examined further.