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Tri Fajari
"Maple Syrup Urine Disease is a disparity of leusin decarboxilation and isoleusin of valin defect that is synthesized with complex enzyme systems. It is a rare disease and represents disparity. In some cases can generate ketosis that grows according to health change and can cause comma. Dental treatment of a child with Maple Syrup Urine Disease was not clearly mentioned, there is only a factor such as infection which is very dangerous at any age and can generate irregular metabolism. Dental treatment of a child with Maple Syrup Urine Disease accompanied by mental retardation must to be done continuously to avoid infections that can result the death of the patient."
Jurnal Kedokteran Gigi Universitas Indonesia, 2003
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Artikel Jurnal  Universitas Indonesia Library
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Demak Agustina
"Masalah tidur pada anak di rumah singgah yang sedang menjalani kemoterapi dapat meningkat bila tidak ditangani dengan tepat. Rumah singgah merupakan rumah kedua bagi anak dan orang tua/pendamping untuk tinggal bersama saat menjalani pengobatan. Jumlah anak dengan kanker yang tinggal di rumah singgah Jakarta dan Pekanbaru ada 104 anak. Penelitian ini bertujuan untuk menganalisis faktor yang dapat memengaruhi masalah tidur pada anak dengan kanker di rumah singgah. Jenis penelitian ini studi kuantitatif, dengan desain penelitian cross sectional, menggunakan tekhnik consecutive sampling. Penelitian dilakukan di rumah singgah Yayasan Kasih Anak Kanker Indonesia (YKAKI) Jakarta dan Pekanbaru dengan melibatkan 62 anak yang memenuhi kriteria inklusi (42 anak di Jakarta dan 20 anak di Pekanbaru). Pengambilan data menggunakan instrumen data demografi, Skala Fatigue Onkologi Anak_Allen (Skala FOA_A), Skala Depresi CES-DC, Skala Nyeri (Face), dan Skala Gangguan Tidur pada Anak (Skala GATIA). Hasil penelitian menunjukkan bahwa faktor yang berpengaruh terhadap masalah tidur di rumah singgah yaitu depresi (p=0,002, B=-9,907) dan jenis kanker (p=0,003, B=-4,480). Kedua faktor ini dapat dijadikan pertimbangan bagi perwat anak dalam memberikan intervensi yang tepat dan berkualitas dalam mengatasi masalah tidur di rumah singgah.

Sleep problems which happened in children at halfway house are undergoing to the chemotherapy that can increase if it is not treated properly. A halfway house is a second home for children and their parents/guardians to live together while undergoing treatment. The number of children with cancer living in shelter homes that located in Jakarta and Pekanbaru are 104 children. The aims of this study is to analyze the factors that can affect sleep problems in children with cancer in shelter homes. This type of research is a quantitative study, with a cross-sectional research design, using a consecutive sampling technique. The study was conducted at the Indonesian Cancer Child Care Foundation (YKAKI) shelter in Jakarta and Pekanbaru, involving 62 children who met the inclusion criteria (42 children in Jakarta and 20 children in Pekanbaru). Data retrieval using demographic data instruments, Pediatric Oncology Fatigue Scale_Allen (FOA_A Scale), CES-DC Depression Scale, Pain Scale (Face), and Sleep Disorders Scale in Children (GATIA Scale). The results showed that the factors that influenced sleep problems in the halfway house were depression (p=0.002, B=-9.907) and the type of cancer (p=0.003, B=- 4.480). These two factors can be taken into consideration for pediatric nurses in providing appropriate and quality interventions in overcoming sleep problems in shelter homes."
Depok: Fakultas Ilmu Keperawatan Universitas Indonesia, 2021
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UI - Tesis Membership  Universitas Indonesia Library
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Syifaurrahma Hanif
"Latar belakang: Pandemi Covid-19 menyebabkan terbentuknya beberapa kebijakan oleh pemerintah guna mencegah penyebaran penyakit. Kebijakan yang dibuat berupa PSBB (pembatasan sosial berskala besar). PSBB ini menyebabkan semua aktivitas yang tidak mendesak dilakukan dari rumah termasuk sekolah. Hal ini menyebabkan terjadinya perubahan kebiasaan terhadap anak-anak usia sekolah dasar. Perubahan kebiasaan tersebut berupa peningkatan penggunaan internet dan juga perubahan pola tidur. Orang tua yang memiliki anak usia sekolah dasar mengeluhkan bahwa sang anak menngalami penurunan kualitas tidur. Penurunan kualitas tidur dapat menjadi indikasi mengalami gangguan tidur yang kadang tidak disadari oleh sang anak dan orang tuanya. Gangguan tidur dapat berdampak kepada emosi, proses tumbuh kembang dan kognitifnya. Oleh karena itu, perlu diketahuinya hubungan aspek sosiodemografi terhadap gangguan tidur pada anak di sebelum dan selama pandemi Covid-19
Metode: Penelitian ini menggunakan data sekunder dari projek SEANUTS II yang diambil dari anak usia 6-12 tahun di 22 Kabupaten/Kota di Indonesia. Jenis studi yang digunakan adalah before and after studies dengan uji yang digunakan adalah uji Chi-square, Uji normalitas, uji Kruskall-Wallis dan uji Mc-Nemar)
Hasil: Prevalensi gangguan tidur pada periode sebelum pandemi sebesar 41.82%, sedangkan prevalensi gangguan tidur saat pandemi mengalami penurunan dibanding sebelum pandemi menjadi 40.19%. Akan tetapi, hubungan antara gangguan tidur dengan pandemi Covid-19 tidak memiliki hubungan yang bermakna (p>0.05) Terjadinya peningkatan prevalensi gangguan tidur pada domain sleep-wake transisiton disorders dan diorders of excessive sonolence pada periode saat pandemi dibanding sebelum pandemi. Tidak adanya hubungan yang signifikan antara jenis kelamin dan usia dengan gangguan tidur baik sebelum pandemi dan saat pandemi (p > 0.05). Akan tetapi, pada variabel area tempat tinggal periode sebelum pandemi memiliki hubungan yang signifikan dengan gangguan tidur (p < 0.05), sedangkan area tempat tinggal pada periode pandemi tidak memiliki hubungan yang siginifikan dengan gangguan tidur.
Kesimpulan: Terjadinya penurunan prevalensi gangguan tidur pada pandemi dibanding sebelum pandemi. Tidak ditemukannya hubungan yang signifikan antara usia dan jenis kelamin dengan gangguan tidur baik periode sebelum dan selama pandemi, sedangkan aspek area tempat tinggal memiliki hubungan yang signifikan dengan gangguan tidur hanya pada periode sebelum pandemi.

Abstrak Berbahasa Inggris:
Introduction: The Covid-19 pandemic has led to the formation of several policies by the government to prevent the spread of the disease. The policy made is in the form of PSBB (large-scale social restrictions). This PSBB causes all non-urgent activities to be carried out from home, including school. This causes a change in the habits of elementary school-age children. Changes in these habits are in the form of increased use of the internet and also changes in sleep patterns. Parents who have elementary school-aged children complain that their children experience a decrease in sleep quality. Decreased sleep quality can be an indication of having a sleep disorder that is sometimes not realized by the child and his parents. Sleep disturbances can have an impact on emotions, growth, and cognitive processes. Therefore, it is necessary to know the relationship between sociodemographic aspects to sleep disorders in children before and during the Covid-19 pandemic.
Method: This study used secondary data from the SEANUTS II project taken from children aged 6-12 years in 22 districts/cities in Indonesia. The type of study used is before and after studies with the tests used are the Chi-square test, normality test, Kruskal-Wallis test, and Mc-Nemar test)
Result: The prevalence of sleep disorders before the pandemic period was 41.82%, while the prevalence of sleep disorders during the pandemic was 41.82%. the pandemic has decreased compared to before the pandemic to 40.19%. However, the relationship between sleep disturbances and the Covid-19 pandemic was not significant (p>0.05). There was an increase in the prevalence of sleep disorders in the domain of sleep-wake transition disorders and orders of excessive somnolence during the pandemic period compared to before the pandemic. There was no significant relationship between sex and age with sleep disturbances before and during the pandemic (p > 0.05). However, the area of ​​residence in the pre-pandemic period had a significant relationship with sleep disturbances (p < 0.05), while the area of ​​residence during the pandemic period did not have a significant relationship with sleep disturbances.
Conclusion: There was a decrease in the prevalence of sleep disorders during the pandemic compared to before the pandemic. No significant relationship was found between age and sex with sleep disturbances both before and during the pandemic, while the area of ​​residence had a significant relationship with sleep disturbances only in the pre-pandemic period
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Jakarta: Fakultas Kedokteran Universitas Indonesia, 2022
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UI - Skripsi Membership  Universitas Indonesia Library
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Alya Hediati Tri Charissa
"Kehadiran seorang anak dengan spektrum autisme dalam keluarga dapat menjadi sebuah tantangan bagi saudara kandung. Penelitian ini bertujuan untuk melihat bagaimana peran keberfungsian keluarga terhadap well-being (emosi positif dan negatif, serta psychological flourishing) pada saudara dari anak dengan spektrum autisme. Penelitian ini merupakan penelitian kuantitatif, variabel keberfungsian keluarga diukur dengan Family Assessment Device (FAD), serta well-being diukur menggunakan Scale of Positive and Negative Emotion (SPANE) dan Flourishing Scale (FS). Penelitian ini melibatkan 136 partisipan dengan rentang usia 18 - 35 tahun. Hasil pada penelitian ini menunjukkan keberfungsian keluarga secara umum ditemukan dapat memprediksi well-being (emosi positif dan negatif) secara signifikan F(1,134) = 28.278, p < 0.001, R2 = 0.174, serta well -being (psychological flourishing) secara signifikan F(1,134) = 30.914, p < 0.001, R2 = 0.181). Dari hasil tersebut dapat disimpulkan bahwa semakin tinggi tingkat keberfungsian keluarga yang dimiliki individu, akan semakin tinggi pula kemungkinan individu tersebut memiliki well-being yang baik.

The presence of a child with autism spectrum in the family may be a challenge for their siblings. This study aims to see how the role of family functions on the well- being (positive and negative emotions, and psychological flourishing) of children with autistic sibling. This study is a quantitative study, the function of family were measured using the Family Assessment Device (FAD), and well-being was measured using the Scale of Positive and Negative Emotion (SPANE) and Flourishing Scale (FS). This study involved 136 participants with an age range of 18-35 years. The results of this study indicate that the function of family in general is found to be able to significantly predict the well-being (positive and negative emotions) F F(1,134) = 28.278, p < 0.001, R2 = 0.174, and well-being (psychological flourishing) by F(1,134) = 30.914, p < 0.001, R2 = 0.181). From these results it can be said that a higher level of function in the family results in higher possibility of the individual having good welfare."
Depok: Fakultas Psikologi Universitas Indonesia, 2022
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UI - Skripsi Membership  Universitas Indonesia Library
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Purwaningsih
"Latar Belakang: Perilaku abberant sering terdapat pada pasien GSA. Salah satu kuesioner yang bisa digunakan untuk menilai perilaku abberant adalah kuesioner ABC-C 2017. Kuesioner ABC-C 2017 mengukur 5 domain perilaku abberant (iritabilitas, penarikan diri secara sosial, perilaku stereotipik, hiperaktivitas/ ketidakpatuhan dan pola bicara yang tidak tepat) pada anak dan remaja dengan diagnosis GSA, saat ini belum ada versi Bahasa Indonesia.
Metode: Penelitian ini menggunakan desain potong lintang untuk menilai kesahihan dan keandalan kuesioner ABC-C 2017 versi Bahasa Indonesia. Kesahihan isi dihitung menggunakan Content Validity Index for Items (I-CVI) dan Content Validity Index for Scales (S-CVI). Uji keandalan konsistensi internal dihitung menggunakan Cronbach alpha. Penelitian ini juga menilai proporsi perilaku abberant berdasarkan 5 domain kuesioner ABC-C 2017 versi Bahasa Indonesia, pada anak dan remaja dengan GSA di Poliklinik Jiwa Anak dan Remaja RSCM.
Hasil: Hasil analisis menunjukkan nilai I-CVI dan S-CVI kuesioner ABC-C 2017 versi Bahasa Indonesia sebesar 0,917, sehingga kesahihan isi kuesioner ini dinilai baik. Hasil keandalan konsistensi internal baik sampai excellent dengan nilai Cronbach’s alpha untuk masing-masing domain iritabilitas 0,938; penarikan diri secara sosial 0,936; perilaku stereotipik 0,930; hiperaktivitas, ketidakpatuhan 0,949 dan domain pola bicara yang tidak tepat 0,869. Proporsi perilaku abberant berdasarkan penilaian 5 domain kuesioner ABC-C 2017 versi Bahasa Indonesia, pada anak dan remaja dengan GSA di Poliklinik Jiwa Anak dan Remaja RSCM, didapatkan hasil, domain iritabilitas derajat ringan sebesar 70,6%; penarikan diri secara sosial derajat ringan 72,5%; perilaku stereotipik 100% derajat ringan; hiperaktivitas/ketidakpatuhan derajat sedang 47,1%, dan pola bicara yang tidak tepat 100% derajat ringan. Proporsi perilaku abberant berdasarkan usia dan jenis kelamin juga didominasi derajat ringan, kecuali domain hiperaktivitas/ketidakpatuhan derajat sedang. Tidak didapatkan perbedaan yang bermakna secara statistik, proporsi perilaku abberant berdasarkan usia dan jenis kelamin anak.
Kesimpulan: Kuesioner ABC-C 2017 versi Bahasa Indonesia dapat dipakai di Indonesia untuk penelitian selanjutnya, mendeteksi 5 domain perilaku abberant pada pasien GSA dan sebagai modul pendidikan bagi tenaga kesehatan.

Background: Abberant behavior is often found in ASD patients. One of the questionnaires that can be used to assess abusive behavior is the 2017 ABC-C questionnaire. The 2017 ABC-C questionnaire measures 5 domains of abberant behavior (irritability, social withdrawal, stereotypic behavior, hyperactivity/non-compliance and inappropriate speech patterns) in children. and adolescents with a diagnosis of ASD, currently there is no Indonesian version.
Methods: This study used a cross-sectional design to assess the validity and reliability of the Indonesian version of the 2017 ABC-C questionnaire. Content validity was calculated using the Content Validity Index for Items (I-CVI) and the Content Validity Index for Scales (S-CVI). Internal consistency reliability test was calculated using Cronbach alpha. This study also assessed the proportion of abusive behavior based on the 5 domains of the Indonesian version of the 2017 ABC-C questionnaire, in children and adolescents with ASD at the Children and Adolescent Mental Polyclinic RSCM.
Results: The results of the analysis show that the I-CVI and S-CVI scores of the 2017 ABC-C Indonesian version of the questionnaire are 0.917, so the validity of the contents of this questionnaire is considered good. The results of the reliability of internal consistency are good to excellent with Cronbach's alpha value for each irritability domain 0.938; social withdrawal 0.936; stereotypic behavior 0.930; hyperactivity, non-compliance 0.949 and inappropriate speech pattern domain 0.869. The proportion of abnormal behavior based on the assessment of the 5 domains of the 2017 ABC-C questionnaire in Indonesian version, in children and adolescents with ASD at the Child and Adolescent Mental Polyclinic RSCM, the results obtained, the domain of mild irritability was 70.6%; mild social withdrawal 72.5%; 100% mild stereotypic behavior; moderate degree of hyperactivity/non-compliance is 47.1%, and inappropriate speech is 100% mild. The proportion of abberant behavior based on age and gender was also dominated by mild degrees, except for the moderate degree of hyperactivity/non-compliance domain. There was no statistically significant difference, the proportion of abusive behavior based on the age and sex of the child.
Conclusion: The Indonesian version of the ABC-C 2017 Questionnaire can be used in Indonesia for further research, detecting 5 domains of abnormal behavior in ASD patients and as an education module for health workers.
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Depok: Fakultas Kedokteran Universitas Indonesia, 2022
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UI - Tesis Membership  Universitas Indonesia Library
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"The variation of teeth number can occur at initiation phase of tooth development, the etiology is unclear but it be supposed by the excessive lamina dental activity. The supernumerary teeth can be single or multiple, at one side or two side, with conical, tubercle or normal form, undergo eruption or impacted, and with parallel or contrary direction of teeth development. The supernumerary teeth in incisive region is mesiodens. In this case report, the supernumerary teeth occured at mixed tooth period which it result in the tooth arrangement is bad. The mesiodens was extracted as the position of upper jaw central incisive teeth were corrected. The second supernumerary tooth with contrary direction was removed by surgery."
Journal of Dentistry Indonesia, 2003
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Artikel Jurnal  Universitas Indonesia Library
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Ghina Karisma
"Latar belakang: Perawatan ortodonti interseptif dapat mengurangi prevalensi maloklusi di Indonesia yang tinggi yaitu sebesar 80, namun hingga saat ini faktor-faktor yang berhubungan dengan kebutuhan subjektif akan perawatan ortodonti interseptif belum diketahui.
Tujuan: Menganalisis hubungan kebutuhan normatif perawatan ortodonti interseptif, sikap terhadap estetika gigi, pengetahuan kesehatan gigi dan mulut, jenis kelamin, dan tingkat sosioekonomi dengan kebutuhan subjektif perawatan ortodonti interseptif.
Metode: Desain penelitian adalah cross sectional, subjek penelitian adalah 101 murid SDI Al-Azhar 17 Bintaro berusia 8-11 tahun, yang dilakukan pemeriksaan klinis menggunakan kaca mulut dan probe, sedangkan untuk mengetahui kebutuhan normatif perawatan ortodonti interseptif digunakan alat ukur IKPO-I, dan untuk mengetahui variabel lainnya dengan kuesioner. Hubungan antarvariabel dianalisis dengan uji koefisien kontingensi dan uji korelasi Eta.
Hasil: Menunjukkan tidak terdapat hubungan yang bermakna antara jenis kelamin dengan kebutuhan subjektif perawatan ortodonti interseptif p-value=0,625, kebutuhan normatif perawatan ortodonti interseptif r=0,178, sikap terhadap estetika gigi r=0,059, pengetahuan kesehatan gigi dan mulut r=0,028, dan tingkat sosioekonomi r=0,068 dengan kebutuhan subjektif perawatan ortodonti interseptif.
Kesimpulan: Tidak terdapat hubungan yang bermakna antara kebutuhan normatif perawatan ortodonti interseptif, sikap terhadap estetika gigi, pengetahuan kesehatan gigi dan mulut, jenis kelamin, dan tingkat sosioekonomi dengan kebutuhan subjektif perawatan ortodonti interseptif.

Background: Interceptive orthodontic treatment can reduce the high prevalence of malocclusion in Indonesia which is 80, however, factors influencing the perceived need for interceptive orthodontic treatment is unknown.
Objectives: To analyze the relationship between normative orthodontic treatment need, dental aesthetic self perception, oral health knowledge, gender, socioeconomic status, and perceived need for interceptive orthodontic treatment.
Methods: The design of this study is cross sectional, subjects are 101 students at Al Azhar 17 Bintaro Elementary School aged 8 11 years. Data were obtained through clinical examination using dental mirror and probe. IKPO I is used to know the normative interceptive orthodontic treatment need and questionnaire is used to know other variables. The relationship between variables are analyzed with contingency coefficient analysis and Eta correlation analysis.
Results: Showed no significant relationship between gender p value 0,625, normative orthodontic treatment need r 0,178, dental aesthetic self perception r 0,059, oral health knowledge r 0,028, socioeconomic status r 0,068, and perceived need for interceptive orthodontic treatment.
Conclusion: There are no significant relationship between normative orthodontic treatment need, dental aesthetic self perception, oral health knowledge, gender, and socioeconomic status and perceived need for interceptive orthodontic treatment need.
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Jakarta: Fakultas Kedokteran Gigi Universitas Indonesia, 2017
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UI - Skripsi Membership  Universitas Indonesia Library
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Maulida Aristawati
"Analisis gangguan fonologi dan pengaruhnya terhadap penguraian kata pada anak Autism Spectrum Disorder (ASD; eg, Santoso, et al., 2017, Ningsih, 2015) masih jarang ditemukan dalam penelitian kebahasaan Indonesia. Tulisan ini bertujuan untuk membahas beberapa gangguan fonologis pada anak ASD dan keterampilan decoding mereka, terutama untuk kata-kata dengan konsonan bilabial. Tujuan lain dari penelitian ini adalah untuk menemukan metode atau strategi yang paling efektif yang dapat digunakan dalam mengajar anak ASD membaca teks. Selain itu, hasil tulisan ini juga dapat menjadi studi percontohan untuk mengetahui bagaimana anak ASD akan melafalkan konsonan bilabial dalam bahasa Inggris mengingat fonem konsonan bilabial dalam bahasa Indonesia dan bahasa Inggris cukup mirip. Metode yang digunakan dalam penelitian ini adalah metode kualitatif dengan tiga anak ASD berusia antara 14 dan 18 tahun dengan kondisi kecerdasan yang berbeda. Studi tersebut mengungkapkan bahwa peserta ASD tidak bisa mengucapkan semua fonem konsonan bilabial [p], [b], [m], dan [w] secara akurat dalam tugas pengulangan, dan masing-masing memiliki hambatan saat menyuarakannya. Proses decoding atipikal diklasifikasikan dalam tiga kondisi; membaca keseluruhan teks dengan font ukuran normal secara mandiri, membaca kata bilabial dengan font ukuran normal secara mandiri, dan membaca kata bilabial dengan font ukuran besar secara mandiri. Berdasarkan tingkat keberhasilan dalam pengucapan di tiga kondisi decoding, metode alternatif diusulkan dalam membantu membaca ASD untuk membacakan kata-kata; menggunakan kata-kata berukuran besar. Kesimpulannya, makalah ini mengakui kesulitan anak ASD dalam membunyikan fonem konsonan bilabial, proses fonologis yang terjadi pada mereka saat menyuarakan kata-kata, dan metode baru yang dapat digunakan dalam mengajar mereka membaca.

Phonological impairment analysis and its effects on word decoding in children with Autism Spectrum Disorder (ASD; e.g., Santoso, et al., 2017, Ningsih, 2015) is still rarely found in Indonesian linguistic research. This paper aims to discuss some phonological impairments in ASD children and their decoding skills, especially for words with bilabial consonants. Another purpose of this study is to discover the most effective method or strategy that can be used in teaching ASD children to read a text. Additionally, the result of this paper could also become a pilot study for knowing how ASD children would pronounce bilabial consonants in English considering that bilabial consonant phonemes in Indonesian and English are quite similar. The method used in this study is the qualitative method with three ASD children aged between 14 and 18 years old with different intelligence conditions. The study revealed that the ASD participants could not pronounce all the bilabial consonant phonemes [p], [b], [m], and [w] accurately in the repetition task, and each had her or his impediment while voicing them out. Atypical decoding processes were classified in three conditions; reading the whole text with a normal-size font independently, reading bilabial words with a normal-size font independently, and reading bilabial words with a big-size font independently. Based on the extent of the success in pronunciation across the three decoding conditions, an alternative method was proposed in assisting ASD reading to read out words; using big-size words. In conclusion, this paper acknowledges difficulty of ASD children in sounding the bilabial consonant phonemes, a phonological process that happens to them while voicing out the words, and a new method that can be used in teaching them reading."
Depok: Fakultas Ilmu Pengetahuan dan Budaya Universitas Indonesia, 2022
TA-pdf
UI - Tugas Akhir  Universitas Indonesia Library
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"Children are a nation's greatest inheritance shaping the country's future. In Indonesia, it is estimated that almost 40% of the population or around 85 million are children who are in their developing years. One of a parents' roles is to observe that their children's dental structure is growing suitably for their age. Most parents have a concern that their children have (or will have) a malocclusion or malposition caused by combined features of disharmony in their teeth. Such a disharmony will affect the overall facial structure development process, e.g. in the jaw, facial bones and soft tissues such as lips, cheeks and even the tongue. Should such condition occur on a child, it may have a negative psychological affect on a growing child, such as causing low self-esteem. A child's dental development needs parents' special attention as it concerns their overall dental health. On the other hand, many parents do not have proper knowledge of the normal dental growth/development. In case of abnormal development the parents should at least know whether or not their child needs orthodontic care. With the Orthodontic Treatment Needs Indicator (OCNI) the parents can easily determine at an early stage whether or not the child needs to have an orthodontic treatment. The OCNI involves a set of question to parents and child regarding the child's dental development, and has a simple a self-assessment-based scoring with the help of a dentist as consultant. An OCNI score intends to achieve a better orthodontic treatment process for the potential patient, to improve the quality of the child's dental health and to achieve healthy and productive teeth."
[Fakultas Kedokteran Gigi Universitas Indonesia, Journal of Dentistry Indonesia], 2007
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Artikel Jurnal  Universitas Indonesia Library
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Andria Saptyasari
"ABSTRAK
Jumlah anak autis di Indonesia terus meningkat tahun 2010 1: 300 dan
tahun 2015 di setiap 250 kelahiran ada 1 anak yang lahir autis. Anak autis masih
dianggap sebagai pihak ketiga (third party) sekaligus stressor bagi keluarga.
Kestabilan kondisi keluarga seperti ini sulit untuk dicapai sebab ada sebuah
uncertainty (ketidakpastian) kapan kondisi ini akan berakhir dan memang tidak
ada jaminan kapan anak autis akan menjadi mandiri. Inilah yang memicu
ketegangan hubungan spouse maupun parenting dalam hubungan segitiga
(triangle relationship). Sehingga penelitian ini ingin memaparkan pola dialektika
hubungan interpersonal dalam keluarga dengan anak autis dan melihat bagaimana
mereka menegosiasikan kontradiksi tersebut dalam mencapai suasana yang
kondusif (harmonis) di sistem keluarganya. Relational dialectics theory
digunakan untuk menjelaskan kontradiksi dan dialektika hubungan interpersonal
ini. Metode Interpretative Phenomenologycal Analysis digunakan untuk melihat
pola dialektika keluarga autis dari penuturan pengalaman masing-masing anggota
keluarga non autis.
Hasil penelitian menunjukkan terjadi ketidakseimbangan dalam pola
hubungan interpersonal keluarga dengan anak autis yang memiliki sistem tertutup
tetapi bukan berarti mengarah ke centrifugal karena tergantung pada autistic
child background, personal background, family background dan beliefs
background seperti respon cepat ?bangkit? (resilience) dari kesedihan, menerima
dengan ikhlas, bersyukur, pasrah ketika usaha sudah maksimal, tidak
menyalahkan diri sendiri ataupun pasangan, semua respon tersebut lebih
mengarahkan ke keharmonisan (centripetal) antar individu dalam keluarga dengan
anak autis. Budaya patriarki masih terlihat di mana bapak berkorban finansial
sedangkan ibu berkorban tenaga. Menariknya, walaupun ibu mengeluarkan tenaga
yang besar untuk anak autisnya tetapi ketika bapak hanya memberikan sedikit
perhatian terhadap ibu dengan mengajak jalan/makan, menonton bioskop berdua
ataupun mengucapkan ?tidak usah bangun terlalu pagi untuk memasak? karena
bapak tahu lelahnya ibu, hal itu mampu ?meluruhkan? beban berat dan
?menentramkan? perasaan ibu yang seharian mengurus anak autisnya

ABSTRACT
Number of children with autism in Indonesia continues to increase with the trend
in 2010. 1:300 and 2015 in every 250 births there was one autistic child born.
Children with autism are still regarded as a third party once the stressor for
families. The stability of autistic family are difficult to be achieved because there
is an uncertainty such as when these conditions will end and there is no guarantee
when the autistic child will become independent. These conditions cause tension
in spouse or parenting relationships or in the triangular relationship. Thus, this
study aims to expose the pattern of interpersonal relationships dialectic in families
with an autistic child and see how they negotiate the contradiction in achieving a
conducive atmosphere (harmony) in the family system. Relational Dialectics
Theory is used to explain the contradictions and their dialectics. Interpretative
Phenomenologycal Analysis is used to see a pattern of relational dialectic in
autism families from the non-autistic family members? narrative about their
experience.
The results showed there was imbalance relationships pattern in closed family
system with autistic child but it did not mean that it was centrifugal because it
depends on autistic child background, personal background, family background
and beliefs background such as rapid response to resilience, accept willingly, be
grateful, be resigned when efforts have the maximum, do not blame yourself or
your partner, all the responses are more directed to harmony (centripetal) among
individuals in families with an autistic child. Patriarchal culture is still visible
where the father is more sacrifice financially while the mother sacrifices
physically. Interestingly, although mothers expend so much time and energy to
her autistic child, but when the father paid little attention to the mother by taking
the road/dining together, watch the movie or just saying the words "do not have to
get up too early to cook" because father knows how exhausted mother is, it has
been able to "shed" a heavy burden and to "pacify" the mother feeling taking care
of children with autism all day."
2016
D2192
UI - Disertasi Membership  Universitas Indonesia Library
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