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"Infeksi HIV yang bersifat kronik memberikan dampak negatif terhadap kualitas hidup pasien, termasuk anak. Kualitas hidup dapat dipengaruhi oleh berbagai faktor, salah satunya adalah status ekonomi. Studi potong lintang ini bertujuan untuk menganalisis hubungan antara status ekonomi keluarga dengan kualitas hidup anak terinfeksi HIV. Secara consecutive sampling didapatkan 87 anak terinfeksi HIV yang sedang menjalani rawat jalan di RSCM beserta orang tua atau pengasuh utamanya. Nilai kualitas hidup didapatkan melalui kuesioner PedsQLTM generik dalam bahasa Indonesia, yang terdiri atas laporan anak (usia 5-18 tahun) dan laporan orang tua (usia 2-18 tahun). Data juga diperoleh dari pengisian kuesioner identitas dan rekam medik pasien. Sebanyak 48 (55,2%) subyek berasal dari keluarga dengan status ekonomi yang rendah, sedangkan 39 (44,8%) sisanya berstatus ekonomi tinggi. Berdasarkan laporan anak, 34 (65,4%) anak memiliki kualitas hidup normal dan 18 (34,6%) lainnya terganggu. Sementara berdasarkan laporan orang tua, 51 (58,6%) anak memiliki kualitas hidup normal dan 36 (41,4%) memiliki kualitas hidup terganggu. Uji chi-square menunjukkan tidak terdapat hubungan bermakna antara status ekonomi dan kualitas hidup anak terinfeksi HIV baik menurut laporan anak (p= 0,444) maupun laporan orang tua (p=0,415).

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Chronic HIV infection has negative effect for patient’s quality of life (QoL), including children. The QoL can be affected by multiple factors, one of them is economic status. This cross sectional study was conducted to analyze the correlation between family’s economic status and QoL in HIV infected children. By consecutive sampling, there was 87 HIV infected children who were outpatients in Cipto Mangunkusumo Hospital with their parent or main caregiver. The QoL score was obtained from PedsQLTM questionnaire in bahasa Indonesia, conclude of child-self report (5-18 y.o.) and parent-proxy report (2-18 y.o.).

Data was also collected from identity questionnaire and medical record. About 48 (55.2%) subjects was in low economic status while 39 (44.8%) was in high economic status. Based on child-self report, QoL was normal in 34 (65.4%) children and low in 18 (34.6%) children. Meanwhile, parent-proxy report showed that 51 (58.6%) child had normal QoL and 36 (41.4%) child had the low one. The chi-square test showed that there is no significant correlation between economic status and QoL in HIV infected children, based on child-self report (p=0.444) and parent-proxy report (p=0.415.)"

"Infeksi HIV pada anak merupakan masalah kesehatan global yang memberikan dampak terhadap morbiditas dan mortalitas. Berkembangnya terapi antiretroviral menyebabkan infeksi HIV berkembang menjadi suatu penyakit kronis dan mempengaruhi kualitas hidup pengidapnya. Diagnosis HIV pada anak penting dilakukan secara dini karena merupakan langkah awal untuk memulai terapi dan diharapkan dapat meningkatkan kualitas hidup. Terbatasnya data di Indonesia mengenai kualitas hidup anak terinfeksi HIV membuat peneliti tertarik untuk melakukan penelitian mengenai kualitas hidup anak yang terinfeksi HIV dan hubungannya dengan waktu diagnosis. Desain penelitian yang digunakan adalah cross-sectional yang melibatkan 90 anak yang berobat jalan di Rumah Sakit Dr.Cipto Mangunkusumo. Penilaian kualitas hidup dilakukan menggunakan instrumen PedsQL 4.0 Generic Core Scale. Kualitas hidup menurut orangtua menunjukkan responden yang memiliki kualitas hidup normal sebanyak 70%. Sedangkan menurut anak terdapat 75,9% anak memiliki kualitas hidup normal. Sebagian besar (70%) responden didiagnosis HIV pada usia di atas 18 bulan. Dilakukan uji chi-square dan didapatkan tidak terdapat hubungan yang bermakna antara waktu diagnosis dan kualitas hidup anak terinfeksi HIV (nilai p>0,05).

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HIV infection in children is a global health problem that is growing quickly and have an impact on morbidity and mortality. The development of highly active antiretroviral therapy causes HIV infection develops into a chronic disease and affect the quality of life. Early diagnosis of HIV in children is important because it is the first step to initiating therapy and expected to improve the quality of life.

The limited data on the quality of life of HIV-infected children in Indonesia makes researchers interested in conducting research on the quality of life of HIV-infected children and their relation to the time of diagnosis. The design used in this study is cross-sectional involving 90 children in Dr.Cipto Mangunkusomo hospital.

Assessment of quality of life is done using an instrument PedsQL 4.0 Generic Core Scale. Quality of life according to parents showed respondents who have a normal quality of life as much as 70%. Meanwhile, according to the child are 75.9% of children have a normal quality of life. Most (70%) of respondents were diagnosed with HIV at the age of 18 months. Chi-square test have been done and found no significant relation between tim"

"Menurut WHO, kualitas hidup adalah persepsi seseorang terhadap posisinya di dalam kehidupan, di dalam konteks budaya dan sistem nilai yang dianutnya, dan berhubungan dengan tujuan, harapan, standar, dan apa yang menjadi perhatiannya. Penilaian kualitas hidup penderita HIV anak dapat menggunakan PedsQL, yang mencakup aspek fisik, emosi, sosial, sekolah, menurut orang tua dan anak. Tujuan penelitian ini adalah untuk mengetahui kualitas hidup anak terinfeksi HIV dan hubungannya dengan tipe caregiver. Metode penelitian ini menggunakan rancangan cross sectional. Subjek penelitian ini adalah pasien anak terinfeksi HIV berusia 2-18 tahun, yang dirawat jalan, dan memenuhi kriteria inklusi dan tidak memenuhi kriteria ekslusi. Teknik penentuan sampelnya adalah consecutive sampling. Hasil penelitian pada 83 responden orang tua dan 72 responden anak diperoleh data bahwa sebanyak 89% responden anak merasa bahwa kualitas hidupnya baik, 11 % responden anak merasa bahwa kualitas hidupnya buruk. Selain itu, sebanyak 66 % responden orang tua merasa kualitas hidup anaknya baik, sedangkan 34% responden orang tua merasa kualitas hidup anaknya buruk. Sebagian besar tipe caregiver utama adalah orang tua pasien.Kesimpulan dari penelitian ini adalah tidak terdapat hubungan antara kualitas hidup anak terinfeksi HIV dengan tipe caregiver utama.

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According to WHO, quality of life is individual perception about his position in live, in cultural context and value system, and related with purpose, expectation , standard, and his focus. Quality of life in HIV infected children is evaluated using PedsQL which includes physical aspect, emotion, social, school, according to parent and children.

The purpose of this research is to measure quality of life in HIV infected children and it?s relationship with caregiver type.

The methode of this research is cross sectional. The subject of this research is hiv infected children 2-18 years old, inpatient, and fill the inclusion criteria and not fill the exclusion criteria. The sampling methode is consecutive sampling.

The result of the research in 83 parent respondent and 72 children respondent, is 89% children respondent think that they have good quality of life, 11 % children respondent think that they have bad quality of life. Besides that, 66 % parent respondent think thet they have good quality of life, while 34% parent respondent think that their children have bad quality of life. Mostly, the major caregiver type is the children?s parent.

The conclusion of this research is there is no relationship between quality of live in HIV infected children and major caregiver type."

"HIV merupakan suatu infeksi virus yang menyebabkan kerusakan sistem imun tubuh sehingga menjadi rentan terhadap infeksi oportunistik dan mempengaruhi kualitas hidup penderita. Status gizi mempunyai peranan penting dalam fungsi imunitas tubuh. Penelitian ini bertujuan untuk mengetahui hubungan antara kualitas hidup dengan status gizi pada anak yang terjangkiti HIV di RSCM. Penelitian ini menggunakan desain cross-sectional dan data diambil pada bulan Juli 2012 hingga April 2014 dengan melakukan pengisian kuesioner dan pengukuran antropometri terhadap semua pasien anak yang memenuhi kriteria inklusi (69 orang). Data diolah menggunakan program SPSS versi 20.0 dan dianalisis dengan uji Fisher. Hasil penelitian jumlah anak terinfeksi HIV yang memiliki kualitas hidup baik sebesar 71,0% (laporan anak) dan 63,8% (laporan orang tua). Sedangkan jumlah anak yang memiliki kualitas hidup kurang baik sebesar 29,0% (laporan anak) dan 36,2% (laporan orang tua). Uji Fisher menunjukkan tidak ada hubungan bermakna antara kualitas hidup anak yang terinfeksi HIV dengan status gizi berdasarkan laporan anak (p = 0,140) dan berdasarkan laporan orang tua (p = 0,478). Sehingga dapat disimpulkan bahwa tidak terdapat hubungan antara kualitas hidup dengan status gizi anak yang terinfeksi HIV.

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HIV is one of viral infection that cause the damage of immune system thus becomes vulnerable to opportunistic infections and influence patient’s quality of life. The nutritional status has an important role in function of body immune. The purpose of this research is to determine the relationship between the quality of life and the nutritional status of children with HIV in RSCM. The research uses cross-sectional design and the data taken from July 2012 until April 2014 with questionnaires and anthropometry measurements against children that fulfill inclusion criteria (69 children). Data is processed by using SPSS version 20.0 and analyzed with Fisher test.

The result showed that children with HIV that have good quality of life is 71.0% (child-self reports) and 63.8% (parent proxy reports). While the number of children with worse quality of life is 29.0% (child-self reports) and 36.2% (parent proxy reports). Fisher test have shown there is no significant relationship between the quality of life of children with HIV and the nutrition status based children’s reports (p= 0.140) and based parents’ reports (p= 0.478). So the conclusion is there is no relationship between the quality of life and the children’s nutritional status with HIV."

"Latar belakang: Infeksi HIV pada anak masih menjadi beban masalah kesehatan di Indonesia. Kualitas hidup anak terinfeksi HIV lebih rendah dibandingkan dengan anak normal. Terdapat beberapa faktor yang berpengaruh terhadap kualitas hidup anak terinfeksi HIV, salah satunya faktor pengasuh utama. Tujuan dari penelitian ini adalah mengetahui hubungan tingkat pendidikan pengasuh terhadap kualitas hidup anak terinfeksi HIV. Metode: Penelitian ini menggunakan desain potong lintang. Subjek penelitian adalah anak berusia 2-18 tahun dengan infeksi HIV yang menjalani rawat jalan di Rumah Sakit Cipto Mangunkusumo beserta orang tua/wali, diambil dengan metode consecutive sampling. Data tingkat pendidikan pengasuh utama didapatkan melalui wawancara dengan orang tua/wali. Kualitas hidup anak terinfeksi HIV diukur menggunakan kuesioner PedsQLTM 4.0 versi Indonesia serta dibedakan menjadi kualitas hidup menurut laporan anak dan laporan orang tua. Data yang diperoleh dianalisis dengan uji Fisher dengan perangkat lunak SPSS versi 20.0 untuk windows. Hasil: Sebanyak 80 anak dan orang tua/wali terlibat dalam penelitian ini. Pengukuran kualitas hidup menurut laporan anak menunjukkan 13 (25.0%) dan menurut laporan orang tua sebanyak 24 (30.0%) anak terinfeksi HIV mengalami gangguan kualitas hidup. Sebanyak 58 (72.5%) pengasuh utama memiliki tingkat pendidikan menengah. Pengasuh utama dengan pendidikan rendah sebanyak 13 (16.3%) dan pendidikan tinggi 9 (11.3%). Hasil analisis hubungan tingkat pendidikan pengasuh utama dan kualitas hidup menurut laporan anak menunjukkan nilai significancy 1.000 (p<0.05).dan menurut laporan orang tua 0.441 (p<0.05). Kesimpulan: Tidak terdapat hubungan antara tingkat pendidikan pengasuh utama dan kualitas hidup anak terinfeksi HIV.

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Background: HIV infection in children is a health burden in Indonesia. HIV infected-children are known to be having lower quality of life than normal children. There are several factors affect quality of life of HIV-infected children relating with caregivers. The purpose of this study was to determine the relationship between caregiver’s education level and quality of life of HIV infected children.

Methods: This is a cross sectional study. Subjects are 2-18 years HIV-infected children who were outpatient of Cipto Mangunkusumo Hospital along with their caregivers, and taken using consecutive sampling method. The main caregiver’s education level data obtained through interviews with caregivers. Qualities of life of HIV-infected children were measured using Indonesian version of PedsQLTM 4.0 and grouped into children self-report and paret proxy-report quality of life. Data were analyzed with Fisher test using SPSS for windowa version 20.0.

Results: A total of 80 children and caregivers involved in this study. Low quality of life was found in 13 (25.0%) based on children self-report and 24 (30.0%) according to parent proxy-report. Most of caregivers has moderate education level. Caregivers with middle education level were 58 (72.5%), low were 13 (16.3%) and high were 9 (11.3%). Analysis of the relationship between caregiver’s education level and quality of life of HIV-infected children showed p-value 1.000 (p<0.05) according to children reports and parent proxy-reports 0.441 (p<0.005).

Conclusion: There was no correlation between caregiver’s education level and quality of life of HIV infected children."

"HIV/AIDS merupakan penyakit kronik progresif yang dapat menyerang siapa saja, termasuk anak-anak, karena sifatnya yang kronik maka penyakit ini dapat memberikan dampak pada kehidupan anak. Sementara kasus HIV/AIDS pada anak semakin bertambah, termasuk di Indonesia yang merupakan negara dengan fastest growing epidemic di Asia. Pada penelitian ini, peneliti ingin mengetahui salah satu komponen dari penyakit HIV/AIDS yaitu stadium klinis apakah dapat memberikan dampak pada fisik,emosional, dan sosial seorang anak yang diukur melalui kualitas hidup menggunakan kuesioner PedQLTM 4.0. Selain itu, penelitian yang serupa belum pernah dilakukan sebelumnya di Indonesia. Penelitian ini menggunakan desain cross-sectional yang melibatkan 79 anak yang berobat jalan di Poliklinik Alergi Imunologi RSCM, dengan jumlah laki-laki 39 orang (49,4%) dan perempuan 40 orang (50,6%), mayoritas merupakan stadium klinis III (berdasarkan WHO Clinical Staging) yaitu sebanyak 32 orang (40,5%), selebihnya yaitu stadium klinis I sebanyak 5 orang (6,3%), stadium klinis II sebanyak 22 orang (27,8%), dan stadium klinis IV sebanyak 20 orang (25,3%). Pengukuran kualitas hidup menggunakan instrumen PedsQL 4.0 yang terdiri atas komponen kualitas hidup menurut orangtua dan menurut anak. Dilakukan uji chi-square ditemukan tidak terdapat hubungan yang bermakna antara stadium menurut kategori klinis dengan kualitas hidup anak, baik pada usia <5 tahun berdasarkan laporan orangtua (p=0,131), pada usia ≥5 tahun berdasarkan laporan orangtua (p=0,535), dan pada usia ≥5 tahun berdasarkan laporan anak (p=0,881).

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HIV/AIDS is chronic progressive disease that can affect anyone, including the children. Because of the progresivity, HIV/AIDS gives impact to the children’s whole life. Meanwhile the cases of HIV-infected children in Indonesia (one of the fastest growing epidemic country) is increasing over time. The study was conducted to obtain information about the relationship between HIV/AIDS disease severity and the children’s quality of life (QoL). Besides, there was no previous study in Indonesia that measured the HIV-infected children’s QoL and the contributing factors.

Design of this study was cross-sectional and a total of 79 children came to the Allergy Immunology Clinic of Ciptomangunkusumo Hospital answered the questionnaires (males 49,4% and womens 50,6%), the majority of the subjects were diagnosed with clinical stage III (40,5%), the remaining were diagnosed with clinical stage I (6,3%), clinical stage II (27,8%), and clinical stage IV (25,3%). The children’s quality of life was measured by the PedsQL consisted of quality of life answered by parents/caregivers and by the children.

The data was analyzed with Chi-square, the result there was no significance relationship between the clinical stage and the Quality of life of HIV-infected children, consisted of QoL answered by parents/caregivers in under five children(p=0,131), QoL answered by parents/caregivers in five and above five children (p=0,535), and QoL answered by children in five and above five children (p=0,881)."

"Infeksi HIV merupakan masalah kesehatan di dunia yang terus meningkat kejadiannya di Indonesia. Semenjak adanya terapi antiretroviral, usia harapan hidup anak terinfeksi HIV meningkat sehingga fokus pengobatan berubah menjadi kualitas hidup anak. Salah satu tahapan yang harus dilakukan pada anak adalah pembukaan status HIV disclosure . Disclosure dapat meningkatkan kepatuhan anak terhadap terapi HIV. Pada negara maju, kurangnya pedoman yang tepat menyebabkan variasi angka pelaksanaan disclosure antara 18-77 . DI negara berkembang seperti Indonesia, disclosure hanya dilakukan pada 9 anak terinfeksi HIV. Hal ini belum mendapat perhatian dari pemerintah, terutama mengenai faktor-faktor yang mempengaruhi pelaksanaan disclosure. Studi cross-sectional dilakukan terhadap 101 pasien anak terinfeksi HIV di RSCM, Jakarta. Penelitian dilakukan pada bulan Februari 2016 dengan menggunakan kuesioner yang ditanyakan kepada pengasuh pasien anak terinfeksi HIV. Dari 101 anak terinfeksi HIV, hanya sebanyak 31 30,7 pasien sudah mengetahui status HIV-nya. Pada penelitian ini didapatkan hanya keikutsertaan ke dalam kelompok dukungan sebaya KDS yang berhubungan dengan waktu pembukaan status HIV p=0,002 . Sedangkan latar belakang pendidikan, pendapatan, dan pengetahuan tentang disclosure tidak berhubungan bermakna dengan waktu pembukaan status p=0,733; p=0,283; p=0,745 . Sebanyak 30,7 anak terinfeksi HIV pada penelitian ini telah mengetahui status HIV. Dari seluruh latar belakang pengasuh yang diteliti, hanya keikutsertaan ke dalam KDS yang mempunyai hubungan bermakna dengan waktu pembukaan status. Kata kunci: latar belakang, pengasuh, pembukaan status, anak terinfeksi HIV, Jakarta.

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HIV infection is a global health issue with increasing prevalence in Indonesia. Since the era of antiretroviral therapy, life expectancy of children with HIV has increased and the focus of therapy shifts into the children s life qualities. One of the crucial process is HIV disclosure. Disclosure is considered beneficial in increasing children s adherence to HIV therapy. A cross sectional study was counducted on 101 HIV patients in RSCM, Jakarta. This research was conducted on February 2015 using questionnaire answered by caregivers of children with HIV. In developed countries, the lack of accurate guideline causes the variation of HIV disclosure between 18 77 . In developing countries such as Indonesia, disclosure was only performed in 9 children with HIV. The government has not paid attention on this, especially on factors contributed to HIV disclosure. From the 101 patients who participated in this research, only 31 30,7 have been disclosed. In this research, only caregivers participation in peer support group is statistically significant to time of HIV disclosure p 0.002 . Meanwhile, caregiver s education, income, knowledge of disclosure and relation to child are not significant to time of HIV disclosure p 0,733 p 0,283 p 0,745 . In children with HIV, 30,7 have known their HIV status. From all caregivers background that have been studied, only participation in peer support group is found significant to time of HIV disclosure.. Keywords background, caregiver, disclosure, HIV infected pediatric."

"Kualitas hidup pada pasien HIV/AIDS sangat penting untuk diperhatikan karena penyakit infeksi ini bersifat kronis dan progresif sehingga berdampak luas pada segala aspek kehidupan baik fisik, psikologis, sosial, maupun spiritual. Masalah psikososial khususnya depresi dan kurangnya dukungan keluarga terkadang lebih berat dihadapi oleh pasien sehingga dapat menurunkan kualitas hidupnya. Tujuan penelitian ini adalah untuk mengidentifikasi dan menjelaskan hubungan antara depresi dan dukungan keluarga dengan kualitas hidup pada pasien HIV/AIDS. Penelitian ini menggunakan rancangan studi potong lintang dan merekrut sampel sebanyak 92 responden dengan teknik purposive sampling. Hasil penelitian menunjukkan bahwa sebagian besar responden mempunyai kualitas hidup kurang baik (63,0%), mengalami depresi (51,1%), dukungan keluarga non-supportif (55,4%), berjenis kelamin laki-laki (70,7%), berpendidikan tinggi (93,5%), bekerja (79,3%), berstatus tidak kawin (52,2%), mempunyai penghasilan tinggi (68,5%), berada pada stadium penyakit lanjut (80,4%), rata-rata usia 30,43 tahun, dan rata-rata lama mengidap penyakit 37,09 bulan. Pada analisis korelasi didapatkan adanya hubungan yang bermakna antara depresi dan dukungan keluarga dengan kualitas hidup (p=0,000 & p=0,000, α=0,05). Selanjutnya, hasil uji regresi logistik menunjukkan responden yang mengalami depresi dan mempersepsikan dukungan keluarganya non-supportif beresiko untuk memiliki kualitas hidup kurang baik setelah dikontrol oleh jenis kelamin, status marital, dan stadium penyakit. Selain itu, diketahui pula bahwa dukungan keluarga merupakan faktor paling dominan yang berhubungan dengan kualitas hidup dengan nilai OR=12,06. Rekomendasi dari penelitian ini adalah perlu dilakukan intervensi untuk memberdayakan keluarga agar dapat senantiasa memberikan dukungan pada pasien HIV/AIDS dan upaya pencegahan serta penanganan terhadap masalah depresi agar dapat memperbaiki kualitas hidup pasien HIV/AIDS.

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Quality of life of patients with HIV/AIDS become a main concern since this chronic and progressive illness may impact in all aspects of patient?s life: physical, psychological, social, and spiritual. Psychosocial problems especially depression and lack of family support are frequently faced of this patients which effect in reducing their quality of life. The purpose of this study was to identify and to explain the relationship between depression and family support with quality of life in patients with HIV / AIDS. This study used cross-sectional study design, with a total sample is 92 respondents that recruited by purposive sampling technique.

The results showed that the majority of respondents have poor quality of life (63.0%), depression (51.1%), lack of family support (55.4%), male (70.7% ), higher education level (93.5%), work (79.3%), unmarried (52,2%), have higher income (68.5%), in advanced stage of disease (80.4% ), with an average age of 30.43 years, and the average length of illness 37.09 months. Analysis of the correlation showed any significant relationship between depression and family support with quality of life (p=0,000 & p=0,000, α=0,05).

Further analysis with logistic regression test demonstrated that respondents who perceive depressed and family non-supportive are at risk to have poor quality of life after being controlled by gender, marital status, and stage of disease. In addition, this analysis showed that family support is the most influential factors to the quality of life with OR=12,06.

Recommendations from this study is necessary to empower family in order to continously giving support to patients with HIV/AIDS and also needs to prevent and resolve problem of depression in order to improve quality of life of patients with HIV/AIDS."

"Pembukaan status merupakan faktor penting yang diketahui mempengaruhi kepatuhan minum obat antiretroviral dan telah banyak diteliti di negara-negara dengan beban infeksi HIV tinggi. Penelitian ini bertujuan menganalisis hubungan pembukaan status dengan kepatuhan minum obat pada pasien anak terinfeksi HIV di RSUPN Dr. Cipto Mangunkusumo. Penelitian menggunakan desain potong lintang dengan sampel sebanyak 94 pengasuh dari 101 pasien anak terinfeksi HIV. Pengumpulan data pembukaan status dilakukan melalui kuesioner yang dibuat oleh peneliti, sedangkan data kepatuhan minum obat diambil menggunakan kuesioner yang diadaptasi dari instrumen multimetode yang dikembangkan oleh Gavin Steel, dkk. Penelitian ini menunjukkan sebagian besar pengasuh berjenis kelamin perempuan 89,4 , memiliki pendidikan terakhir SMP-SMA 64,9 , memiliki pendapatan di bawah upah minimum provinsi UMP Jakarta 75,5 , tergabung ke dalam kelompok dukungan sebaya 55,3 , dan bukan orangtua kandung dari pasien anak terinfeksi HIV 51,1 . Sebagian besar pasien anak terinfeksi HIV berusia 7 hingga di bawah 12 tahun 69,3 , berjenis kelamin perempuan 50,5 , menjalani terapi ARV lini 1 66,3 , belum mengalami pembukaan status HIV 71,3 , dan memiliki kepatuhan minum obat sedang 50,5 . Dari uji Chi-square diperoleh bahwa tidak terdapat perbedaan proporsi kepatuhan minum obat antara pasien anak terinfeksi HIV yang telah mengalami pembukaan status dengan yang belum mengalami pembukaan status p 0,367.

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Disclosure is an important factor known affecting adherence to antiretroviral therapy that has been extensively studied in high burden countries. This research aims to determine relationship between disclosure and adherence among HIV infeceted children in Dr. Cipto Mangunkusumo Hospital, Indonesia. This research is a cross sectional study with samples of 94 caregivers from 101 HIV infected children. Disclosure data was collected using questionnaire reproduced by researcher, while adherence data was collected using questionnaire adapted from a multi method instrument developed by Gavin Steel, et.al. in West Africa. Demographic data shows that most caregivers are women 89.4 , have middle school education 64.9 , have income less than minimum regional wage of Jakarta 75.5 , join peer group 55.3 , and are not the biological parents of infected children 51.1 . Most children are girls 50.5 , currently in 1st line antiretroviral therapy 66.3 , have not been disclosed 71.3 , dan have moderate level of adherence 50.5 . Statistical analysis using Chi Square shows no relationship between disclosure and adherence among HIV infected children in Dr. Cipto Mangunkusumo Hospital p 0.367."

"[ABSTRAKTujuan: Mengetahui hubungan antara status kesehatan gigi terhadap kualitas hidup anak usia 5 tahun menggunakan Scale of Oral Health Outcomes for Five Year-Old (SOHO-5c). Metode: studi analitik korelatif dan komparatif dengan desain cross sectional menggunakan kuisioner SOHO-5c dan pemeriksaan skor def-t pada 100 anak di TKIT As-Sa?adah dan TKIT Buah Hati, serta uji realiabilitas dan validitas kuisioner SOHO-5c. Hasil: Reliabilitas internal dan eksternal SOHO-5c (Cronbach?s alpha=0,713 dan ICC=0,995). Tingkat pendidikan ibu memiliki hubungan bermakna dengan status kesehatan gigi (p=0,02), status kesehatan gigi memiliki hubungan bermakna dengan kualitas hidup anak (p=0,01). Korelasi positif bermakna antara SOHO-5c dengan precieved oral health dan SOHO-5c dengan skor total def-t (r=0,48; r=0,47). Kesimpulan: Terdapat hubungan bermakna antara tingkat pendidikan ibu dengan status kesehatan gigi anak dan kualitas hidup anak (SOHO-5c), serta status kesehatan gigi anak dengan kualitas hidup anak (SOHO-5c).ABSTRACTObjective: To determine the relationship between dental health status and quality of life of 5 years old children using Scale of Oral Health Outcomes for Five Year-Old (SOHO-5c). Methods: correlative and comparative analytic study with cross sectional study design using SOHO-5c questionnaires and oral examination with def-t scores on 100 children in TKIT As-Sa'adah and TKIT Buah Hati, reliability and validity test of SOHO-5c questionnaire. Results: Internal and external reliability of SOHO-5c (Cronbach's alpha=0,713 dan ICC=0,995). Mother's education level has a significant relationship with dental health status (p=0,02), dental health status has a significant relationship with child's quality of life (p=0,01). A significant positive correlation between the SOHO-5c with precieved oral health and SOHO-5c with total score def-t (r=0,48; r=0,47). Conclusion: there is a significant correlation between mother?s education level with child dental health status and child?s quality of life (SOHO-5c), as well as dental health status of children with the child?s quality of life (SOHO-5c).;Objective: To determine the relationship between dental health status and quality of life of 5 years old children using Scale of Oral Health Outcomes for Five Year-Old (SOHO-5c). Methods: correlative and comparative analytic study with cross sectional study design using SOHO-5c questionnaires and oral examination with def-t scores on 100 children in TKIT As-Sa'adah and TKIT Buah Hati, reliability and validity test of SOHO-5c questionnaire. Results: Internal and external reliability of SOHO-5c (Cronbach's alpha=0,713 dan ICC=0,995). Mother's education level has a significant relationship with dental health status (p=0,02), dental health status has a significant relationship with child's quality of life (p=0,01). A significant positive correlation between the SOHO-5c with precieved oral health and SOHO-5c with total score def-t (r=0,48; r=0,47). Conclusion: there is a significant correlation between mother?s education level with child dental health status and child?s quality of life (SOHO-5c), as well as dental health status of children with the child?s quality of life (SOHO-5c).;Objective: To determine the relationship between dental health status and quality of life of 5 years old children using Scale of Oral Health Outcomes for Five Year-Old (SOHO-5c). Methods: correlative and comparative analytic study with cross sectional study design using SOHO-5c questionnaires and oral examination with def-t scores on 100 children in TKIT As-Sa'adah and TKIT Buah Hati, reliability and validity test of SOHO-5c questionnaire. Results: Internal and external reliability of SOHO-5c (Cronbach's alpha=0,713 dan ICC=0,995). Mother's education level has a significant relationship with dental health status (p=0,02), dental health status has a significant relationship with child's quality of life (p=0,01). A significant positive correlation between the SOHO-5c with precieved oral health and SOHO-5c with total score def-t (r=0,48; r=0,47). Conclusion: there is a significant correlation between mother?s education level with child dental health status and child?s quality of life (SOHO-5c), as well as dental health status of children with the child?s quality of life (SOHO-5c).;Objective: To determine the relationship between dental health status and quality of life of 5 years old children using Scale of Oral Health Outcomes for Five Year-Old (SOHO-5c). Methods: correlative and comparative analytic study with cross sectional study design using SOHO-5c questionnaires and oral examination with def-t scores on 100 children in TKIT As-Sa'adah and TKIT Buah Hati, reliability and validity test of SOHO-5c questionnaire. Results: Internal and external reliability of SOHO-5c (Cronbach's alpha=0,713 dan ICC=0,995). Mother's education level has a significant relationship with dental health status (p=0,02), dental health status has a significant relationship with child's quality of life (p=0,01). A significant positive correlation between the SOHO-5c with precieved oral health and SOHO-5c with total score def-t (r=0,48; r=0,47). Conclusion: there is a significant correlation between mother?s education level with child dental health status and child?s quality of life (SOHO-5c), as well as dental health status of children with the child?s quality of life (SOHO-5c).;Objective: To determine the relationship between dental health status and quality of life of 5 years old children using Scale of Oral Health Outcomes for Five Year-Old (SOHO-5c). Methods: correlative and comparative analytic study with cross sectional study design using SOHO-5c questionnaires and oral examination with def-t scores on 100 children in TKIT As-Sa'adah and TKIT Buah Hati, reliability and validity test of SOHO-5c questionnaire. Results: Internal and external reliability of SOHO-5c (Cronbach's alpha=0,713 dan ICC=0,995). Mother's education level has a significant relationship with dental health status (p=0,02), dental health status has a significant relationship with child's quality of life (p=0,01). A significant positive correlation between the SOHO-5c with precieved oral health and SOHO-5c with total score def-t (r=0,48; r=0,47). Conclusion: there is a significant correlation between mother?s education level with child dental health status and child?s quality of life (SOHO-5c), as well as dental health status of children with the child?s quality of life (SOHO-5c)., Objective: To determine the relationship between dental health status and quality of life of 5 years old children using Scale of Oral Health Outcomes for Five Year-Old (SOHO-5c). Methods: correlative and comparative analytic study with cross sectional study design using SOHO-5c questionnaires and oral examination with def-t scores on 100 children in TKIT As-Sa'adah and TKIT Buah Hati, reliability and validity test of SOHO-5c questionnaire. Results: Internal and external reliability of SOHO-5c (Cronbach's alpha=0,713 dan ICC=0,995). Mother's education level has a significant relationship with dental health status (p=0,02), dental health status has a significant relationship with child's quality of life (p=0,01). A significant positive correlation between the SOHO-5c with precieved oral health and SOHO-5c with total score def-t (r=0,48; r=0,47). Conclusion: there is a significant correlation between mother’s education level with child dental health status and child’s quality of life (SOHO-5c), as well as dental health status of children with the child’s quality of life (SOHO-5c).]"