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"[Latar Belakang : Penilaian kualitas hidup setelah stroke menjadi hal yang umum dimana evaluasi pengobatan harus mencakup kualitas maupun kuantitas kelangsungan hidup. Stroke Specific Quality of Life (SS-QOL) dibuat untuk menangkap semua domain penting pada pasien stroke. Tujuan penelitian ini adalah untuk melakukan uji kesahihan dan keandalan SS-QOL yang diterjemahkan ke dalam bahasa Indonesia yang belum pernah dilakukan sebelumnya.Metode : Uji validitas dan reliabilitas digunakan dalam penelitian ini. SS-QOL bahasa Inggris di tejemahkan kedalam bahasa Indonesia dan diterjemahkan balik ke bahasa Inggris. Sebanyak 30 responden yang sesuai kriteria penerimaan dilakukan wawancara SS-QOL berbahasa Indonesia. Validitas konstruksi dan kriteria dengan uji Spearman correlation, menilai reliabilitas internal consistency dengan alpha Cronbach, menilai reliabilitas test-retest dengan Intra Class Correlation.Hasil : SS-QOL berbahasa Indonesia sesuai dengan SS-QOL berbahasa Inggris. Pada uji validitas konstruksi dan kriteria didapatkan hampir seluruh pertanyaan dalam SS-QOL mempunyai validitas yang baik dengan kekuatan korelasi diatas 3. Terdapat 4 pertanyaan pada V3, L2, UE2 dan UE5 memiliki validitas kurang baik. Reliabilitas pertanyaan secara keseluruhan adalah 0,92 berdasarkan cronbach alpha. Hasil Intra Class Correlation menunjukkan hasil 0,984.Kesimpulan : SS-QOL berbahasa Indonesia mempunyai validitas dan reliabilitas yang baik untuk dapat digunakan sebagai penilaian kualitas hidup pada pasien stroke., Background : Quality of Life assessment after stroke is a common thing, where medical evaluation has to include not only quality but quantity of life. Stroke specific Quality of Life (SS-QOL) is made to capture all important domain in stroke patients . This research aim to test the validity and reliability of the SS-QOL that has been translated to Bahasa Indonesia, which has never been done beforeMethods : The design of research is validity and reliability test, with 30 subject according to the inclusion criteria were interviewed of the SS-QOL that has been translated to Bahasa Indonesia. Construction and criteria validity assessed by Spearman correlation test, Internal consistency by alpha Cronbach, test-retest reliability by Intra Class CorrelationResults : SS-Qol in Indonesian is appropiate with original SS-QOL. In construction and criteria validity , almost all question has a good validity with correlation strength more than 3. There are 4 questions in V3, L2, UE2 and UE5 with less score. Reliability according to alpha Cronbach is 0.92 and Intra Class Correlation is 0,984.Conclusion : SS-QOL in Indonesian had a good validity and reliability, and can be use as quality of life assessment for stroke patients]"

"Latar Belakang. Fibrilasi atrium (FA) merupakan aritmia yang paling sering terjadi pada orang dewasa dan menyebabkan mortalitas dan morbiditas yang besar di dunia. Terdapat >60% pasien FA memiliki gangguan kualitas hidup yang signifikan. Kualitas hidup merupakan luaran baru yang penting dalam pelayanan kesehatan. Salah satu alat ukur kualitas hidup spesifik untuk pasien FA yang memiliki nilai psikometrik yang baik adalah The Atrial Fibrillation Effect on Quality-of-Life (AFEQT). Kuesioner ini sudah diterjemahkan ke berbagai bahasa dan digunakan secara luas di negara lain. Karena kuesioner ini belum pernah diterjemahkan dan divalidasi ke dalam bahasa Indonesia, maka penelitian ini bertujuan untuk menguji validasi kuesioner AFEQT ke dalam bahasa Indonesia. Metode. Penelitian ini menggunakan desain potong lintang dengan pengambilan subjek penelitian yang memenuhi kriteria, bertempat di poliklinik Pelayanan Jantung Terpadu RSCM dari Desember 2021 hingga Maret 2022. Penelitian diawali dengan proses adaptasi budaya dan bahasa sesuai dengan pedoman yang dikeluarkan oleh Guillemin dan Beaton. Sebanyak 30 subjek diikutsertakan pada proses adaptasi budaya dan bahasa dan 102 subjek diikutsertakan dalam proses validasi. Proses validasi meliputi uji validitas (validitas konstruk) dan uji reliabilitas (konsistensi internal dan test-retest).Hasil. Penelitian ini menunjukkan bahwa seluruh item pertanyaan dalam kuesioner AFEQT bahasa Indonesia memiliki korelasi negatif yang kuat (r >0,6) terhadap domainnya masing-masing (r -0,639–-0,960) dan memiliki korelasi positif dengan seluruh domain SF-36 dengan rentang korelasi lemah hingga kuat (r 0,325–0,740). Pada uji reliabilitas didapatkan konsistensi internal yang baik (Cronbach’s ± untuk skor keseluruhan 0,947, masing-masing domain: Gejala 0,818, Aktivitas Sehari-hari 0,943, Kekhawatiran terhadap Terapi 0,894, dan Kepuasan terhadap Terapi 0,865) dan reliabilitas test-retest yang sedang hingga baik (0,521–0,828).Kesimpulan. Kuesioner AFEQT bahasa Indonesia memiliki validitas dan reliabilitas yang baik untuk menilai kualitas hidup pasien fibrilasi atrium di Indonesia.

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Background. Atrial fibrillation (AF) is the most common arrhythmia in adults and causes great mortality and morbidity worldwide. There are >60% of patients with AF have a significant health related quality of life (HRQoL) impairment. Quality of life is an important new outcome in health services. AFEQT is one of the specific HRQoL questionnaires for AF patients which have good psychometric properties. This questionnaire has been translated into various languages ​​and is widely used in other countries. Since this questionnaire has never been translated and validated into Indonesian, this study aims to test the validity and reliability of the Indonesian version of AFEQT questionnaire.

Method. This cross-sectional study was conducted in Poliklinik Pelayanan Jantung Terpadu RSCM from December 2021 to March 2022. The study began with the translation and adaptation process according to the guidelines by Guillemin and Beaton. A total of 30 subjects were included in pre-testing process and 102 subjects were included in the validation process. The validation process includes validity tests (construct validity) and reliability tests (internal consistency and test-retest).

Results. This study shows that all question items in the Indonesian AFEQT questionnaire have a strong negative correlation (r > 0.6) towards their respective domains (r -0.639–-0.960) and have a positive correlation with all SF-36 domains with a weak to strong correlation (r 0.325–0.740). In the reliability test, there was good internal consistency (Cronbach's for overall score: 0.947, Domains: Symptoms: 0.818, Daily Activities: 0.943, Treatment Concern: 0.894, and Treatment Satisfaction: 0.865) and moderate to good test-retest reliability. (0.521–0.828).

Conclusion. The Indonesian version of AFEQT questionnaire has good validity and reliability to assess the quality of life of atrial fibrillation patients in Indonesia."

"Latar belakang: Kuesioner spesifik akne vulgaris AV berbahasa Indonesia yang valid dan reliabel hingga saat ini masih belum ada. Tujuan penelitian ini menilai validitas dan reliabilitas kuesioner Acne-Specific Quality of Life berbahasa IndonesIa Acne-QoL-INA pada pasien AV di Indonesia, sehingga dapat mempunyai alat untuk mengubah data subjektif yang didapat dari keluhan pasien menjadi data objektif yang dapat terukur. Metode: Acne-QoL asli berbahasa Inggris diterjemahkan ke dalam bahasa Indonesia dengan mengikuti pedoman adaptasi lintas budaya. Acne-QoL-INA diisi oleh 48 pasien AV rawat jalan di Rumah Sakit Dr. Cipto Mangunkusumo Indonesia. Analisa validitas menggunakan validitas konstruksi, dilakukan dengan menghitung koefisien korelasi setiap pertanyaan dengan skor ranah dan total korelasi Pearson . Konsistensi internal menggunakan Cronbach untuk menganalisa reliabilitas. Hasil: Usia pasien pada penelitian ini adalah 18 tahun hingga 43 tahun, dengan nilai median 24 tahun. Hasil uji validitas Acne-QoL-INA dengan nilai koefisien korelasi setiap pertanyaan dengan skor ranah adalah 0,47-0,922 serta setiap pertanyaan dengan skor total adalah 0,321-0,789. Hasil uji reliabilitas seluruh ranah Acne-QoL-INA diperoleh Cronbach sebesar 0,756. Kesimpulan: Acne-QoL-INA merupakan instrumen yang valid dan reliabel untuk menilai kualitas hidup pasien AV di Indonesia.

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Background: Until now, There is stil no specific questionnaire for acne vulgaris AV in Indonesian language that valid and reliable. The aim of this study to assess validity and reliability Acne Specific Quality of Life in Bahasa Indonesia Acne QoL INA with AV patien in Indonesia, so we can have the tools to change the subjective data obtained from the patient 39 s complaints into objective data that can be measurable.

Methods: Original English version Acne QoL was translated to Indonesian language according to cross cultural adaptation guideline. Acne QoL INA was administered by 48 patients with AV patient at Dr. Cipto Mangunkusumo hospital in Indonesia. Validity analysis used construct validity, by using item domain and item total score correlation coefficient Pearson correlation. Internal consistency using Cronbach were used for reliability analysis.

Result: Age of patient in this study range from 18 to 43 years median 24 years. Validity of Acne QoL INA with analysis item domain score correlation coefficient is 0,47 0,922 and item total score correlation coefficient is 0,321 0,789. Reliability of all domain of Acne QoL INA with Cronbach score is 0,756.

Conclusion: Acne QoL INA is a valid and reliable instrument for assessing the quality of life of AV patients in Indonesia."

"Latar belakang: Penilaian kualitas hidup dibutuhkan untuk menilai respons terapi. Saatini belum tersedia instrumen penilaian kualitas hidup pasien urtikaria kronik berbahasaIndonesia. CU-Q2oL merupakan kuesioner spesifik urtikaria kronik yang pertama kalidikembangkan dalam versi bahasa Italia. Proses adaptasi lintas bahasa dan budayadiperlukan agar kuesioner dapat digunakan di Indonesia. Uji validitas dan reliabilitaspenting untuk memastikan telah digunakan bahasa atau istilah yang tepat sesuai budayasetempat dan tidak terdapat perubahan validitas dan reliabilitas kuesioner tersebut.Tujuan: Mendapatkan kuesioner CU-Q2oL berbahasa Indonesia yang diadaptasi dariCU-Q2oL berbahasa Italia untuk menilai secara spesifik kualitas hidup pasien urtikariakronik.Metode: CU-Q2oL asli berbahasa Italia diterjemahkan ke bahasa Indonesia. Pengisiankuesioner kualitas hidup urtikaria kronik (KHUK) dilakukan pada 40 pasien denganurtikaria kronik di poliklinik Kulit dan Kelamin RS. Dr. Cipto Mangunkusumo secaradaring menggunakan google form. Uji validitas dilakukan dengan menghitung nilaikoefisien korelasi, uji reliabilitas dilakukan dengan menghitung nilai Cronbach α danintraclass coefficient (ICC).Hasil: Adaptasi lintas bahasa dan budaya CU-Q2oL berbahasa Italia menghasilkansebuah kuesioner KHUK. Nilai koefisien korelasi seluruh pertanyaan dengan skor totalberkisar antara 0,467 – 0,856. Koefisien korelasi pertanyaan dengan skor ranah antara0,585 – 0,958. Cronbach α seluruh pertanyaan 0,923 dan cronbach α pertanyaan sesuairanah antara 0,738 – 0,904. ICC seluruh pertanyaan adalah 0,913 dan ICC setiap ranahantara 0,898 – 0,950.Kesimpulan: Telah diperoleh kuesioner KHUK berbahasa Indonesia berdasarkanadaptasi lintas bahasa dan budaya. Kuesioner KHUK berbahasa Indonesia dinyatakanvalid dan reliabel sebagai suatu alat ukur untuk menilai kualitas hidup pasien urtikariakronik di Indonesia.

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Background: Assessment of quality of life is needed to assess therapeutic response.

There is no instrument for assessing the quality of life of chronic urticaria patients in

Indonesia. CU-Q2oL is a specific questionnaire for chronic urticaria that was first

developed in Italian version. Cross-language and cultural adaptation processes are

needed so that the questionnaire can be used in Indonesia. Validity and reliability tests

are important to ensure that the language or term that used is appropriate to the local

culture and there is no change in the validity and reliability of the questionnaire.

Objective: Obtain an Indonesian-language CU-Q2oL questionnaire that adapted from

Itaian version of CU-Q2oL to specifically assess the quality of life of patients with

chronic urticaria.

Method: The Italian version CU-Q2oL was translated into Indonesian language. The

KHUK questionnaire was answered by 40 chronic urticaria patients in dermatology

dan venereologi clinic of Dr. Cipto Mangunkusumo Hospital using google form.

Validity test is done by calculating the value of the correlation coefficient, reliability

test is done by calculating the value of Cronbach α and intraclass coefficient.

Result: Cross-language and cultural adaptations of Italian vesrsion CU-Q2oL resulted

a KHUK questionnaire.. Correlation coefficient values for all questions with a total

score ranging from 0.467 to 0.856. The question correlation coefficient with domain

scores was between 0.585 - 0.958. Cronbach α of all questions 0,923 and the value of

cronbach α of questions according to the realm ranged from 0.738 - 0.904. The ICC for

all questions is 0.913 and the ICC for each domain ranges from 0.898 - 0.950.

Conclusion: KHUK questionnaire based on cross – language and cultural adaptation

has been obtained. The questionnaire is valid and reliable to assess the quality of life of

chronic urticaria patients in Indonesia."

"Latar Belakang : Implantasi pacu jantung permanen telah menjadi prosedur umum saat ini. Tujuan tindakan pemasangan pacu jantung permanen tidak lagi hanya sebatas morbiditas dan mortalitas, tetapi juga kualitas hidup. Dalam menilai kualitas hidup dibutuhkan kuesioner yang dapat merubah sesuatu yang kualitatif menjadi data kuantitatif. Kuesioner kualitas hidup yang ada saat ini belum ada yang berbahasa Indonesia. Untuk dapat digunakan dalam menilai kualitas hidup di Indonesia perlu adaptasi bahasa dan budaya. Selain itu, kuesioner terjemahan tersebut harus memiliki validitas dan reliabilitas yang baik. Metode : Studi ini adalah studi cross sectional yang terbagi dalam 2 tahap. Tahap awal berupa adaptasi bahasa dan budaya untuk dapat menghasilkan kuesioner SF-36 dan Aquarel berbahasa Indonesia. Tahap akhir berupa uji validitas dan reliabilitas kuesioner SF-36 dan Kuesioner Aquarel. Subjek berjumlah 30 orang pada tahap awal, dan 20 orang pada tahap akhir. Subjek merupakan pasien dengan pacu jantung permanen, yang kemudian akan dilakukan Tes Jalan 6 Menit (6MWT) dan pemeriksaan NT pro-BNP. Validitas SF-36 dinilai berdasarkan nilai korelasi Kuesioner dengan pemeriksaan penunjang, dan validitas Aquarel dinilai berdasarkan nilai korelasi kuesioner Aquarel dengan Kuesioner SF-36, dan korelasi kuesioner dengan pemeriksaan penunjang. Reliabilitas kuesioner dinilai berdasarkan konsistensi internal dan repeatabilitas. Hasil : Kuesioner SF-36 berbahasa Indonesia memiliki korelasi positif antara 6MWT dengan domain PF (Physical Functioning) (r= 0,363; p=0,001), dan memiliki korelasi negatif antara NT Pro-BNP dengan domain GH (General Health) (r= 0,269; p = 0,020) dan MH (Mental Health) (r= -0,271; p = 0,019). Kuesioner Aquarel berbahasa Indonesia memiliki korelasi positif antara 6MWT dengan domain dyspneu (r=0,228; p=0,048), dan memiliki korelasi negatif antara NT proBNP dengan Domain Chest Discomfort (r = -0.231; p = 0.043) dan Dyspneu (r = 0.268; p = 0.020). Kedua kuesioner SF-36 berbahasa Indonesia (Cronbach α = 0.789) dan Aquarel berbahasa Indonesia (Cronbach α = 0.728) memiliki reliabilitas dan repeatabilitas yang baik. Kesimpulan : Pada proses adaptasi bahasa dan budaya tidak terdapat modifikasi yang berarti pada kedua kuesioner dan dapat diterima baik oleh pasien. Kuesioner SF-36 berbahasa Indonesia dan Kuesioner Aquarel berbahasa Indonesia bersifat valid dan reliable.

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acemaker implantation has became common procedure in the last decades. The goal of our therapy was no longer about morbidity and mortality, but quality of life. In assessing the quality of life, we need a questionnaire that can change qualitative value to quantitative value. There is no quality of life questionnaires in Bahasa Indonesia, therefore we need language and cultural adaptation before we can use it in Indonesia. Moreover the translation questionnaire must has good validity and good reliability. We choose SF-36 as generic health related quality of life (HRQoL), as it is the most popular HRQoL questionnaire. Specifically for pacemaker patients, we choose Aquarel Questionnaire. Methods : This cross sectional study was divided into 2 steps. The first step was language and cultural adaptation to create SF-36 and Aquarel questionnaire in Bahasa Indonesia. The final step was validation and reliability test of the translated questionnaire. The subjects were 30 people for the first step , and 20 people for the final step. All the subject were patient with permanent pacemaker. We also conduct two diagnostic tests (6 Minutes Walk Test (6MWT) and NT pro-BNP). SF-36 validity was assessed by its correlation with diagnostic tests, and Aquarel validity was assessed by its correlation with SF-36 and with The diagnostic tests. Both questionnaire reliability assessed by its Internal consistency and repeatability. Results : Our indonesian version of SF-36 shows positive correlation between 6MWT and PF (Physical Functioning) ( r = 0.363 ; p = 0.001) and negative correlation between NT Pro-BNP value with GH (General Health) (r = -0.269; p = 0.020) and MH (Mental Health) (r = -0.271; p = 0.019). Our Indonesian version of Aquarel shows positive correlation between 6MWT with Dyspneu domain ( r = 0.228 ; p = 0.048 ) and shows negative correlation between NT Pro-BNP with Chest Discomfort (r = -0.231; p = 0.043) and Dyspneu (r = -0.268; p = 0.020). Both the Indonesian SF-36 (Cronbach ? = 0.789) and the Indonesian Aquarel (Cronbach ? = 0.728) shows good reliability and repeatability. Conclusions : We succed doing language and cultural adaptation of SF-36 and Aquarel questionnaire. Both Indonesian version questionnaire are valid and reliable ."

"Latar belakang: Dermatitis atopik DA dapat memiliki dampak negatif pada kualitas hidup. Instrumen yang baku untuk menilai kualitas hidup anak dengan dermatitis atopik di Indonesia belum ada. Tujuan: mengetahui validitas dan reliabilitas kuesioner children rsquo;s dermatology life quality index CDLQI berbahasa Indonesia pada anak dengan dermatitis atopik. Metode: Studi potong lintang pada Maret-April 2018 di RSCM dan praktik swasta konsultan alergi dan imunologi anak dengan subyek anak DA usia 4-14 tahun dan anak tanpa penyakit kulit matchingusia . Pasien dan atau orangtua mengisi kuesioner CDLQI berbahasa Indonesia. Waktu yang dibutuhkan untuk pengisian kuesioner dicatat. Pasien dan atau orangtua kemudian mengisi kuesioner CDLQI berbahasa Indonesia ulang dengan dipandu oleh peneliti. Hasil: Enam puluh pasien, yang terdiri dari 30 pasien DA dan 30 pasien kontrol, diikutsertakan dalam penelitian. Kuesioner CDLQI valid dengan p< 0,01 dengan membandingkan skor kelompok DA dan kontrol. Koefisien korelasi Pearson r setiap pertanyaan dengan total didapatkan 0,284-0,752. Dua faktor dengan nilai 0,684-0,852 didapatkan dari analisis faktor. Reliabilitas yang baik didapatkan dengan Cronbach rsquo;s alpha0,775. Indeks kesepakatan ditunjukkan dengan Kappa 0,934-1 p

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Background: Atopic dermatitis AD has negative impacts on quality of life. Standard instrument to measure quality of life of children with atopic dermatitis in Indonesia was not yet available.

Aim: to prove validity and reliability Bahasa Indonesia version of children's dermatology life quality index CDLQI in children with atopic dermatitis.

Methods: A cross sectional study was conducted on March April 2018 in RSCM and pediatric allergy and immunology consultant's private practice. The patients, 4 to 14 year old, with AD and with problems unrelated to the skin age matched were included to complete this questionnaire in Bahasa Indonesia with or without the help of parents. All the patients completed CDLQI again with the help of physician. The time to complete the questionnaire was recorded.

Results: Sixty patients, 30 patients with AD and 30 control patients, were enrolled in the study. The validity of the CDLQI Bahasa Indonesia version was p"

"Kualitas hidup merupakan salah satu parameter keberhasilan intervensi keperawatan pada penyakit kronik, terutama stroke. Penelitian ini bertujuan untuk mengidentifikasi faktor-faktor yang berhubungan dengan empat dimensi kualitas hidup pasien pasca stroke menggunakan metode survei analitik pendekatan cross sectional. Sampel berjumlah 49 pasien pasca stroke. Teknik sampling yang digunakan adalah consecutive sampling. Responden mengisi kuesioner berupa data demografi, 26 pertanyaan WHOQOL- Bref, 10 pertanyaan Index Barthel Scale (IBS), 19 pertanyaan Back Hopelessness Scale (BHS), dan 5 pertanyaan APGAR. Penelitian ini dianalisis menggunakan uji kai kuadrat. Hasil penelitian menunjukkan adanya hubungan signifikan antara tingkat pendidikan dengan domain lingkungan (p=0.004), kategori klinik dengan domain psikologis (p=0.038), status kecacatan dengan domain fisik (p=0.039) dan domain lingkungan (p=0.009). Perlu dilakukan penelitian lanjutan dengan menambah besar sampel atau mespesifikasikan topik penelitian seperti faktor determinan yang mempengaruhi kualitas hidup pasien pasca stroke. Bagi pelayanan keperawatan dapat memberikan dan memodifikasi intervensi keperawatan untuk meningkatkan status kemampuan fungsional pasien.

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The Quality of life is one of the success parameters of nursing interventions on chronic diseases, especially on stroke. The research aimed to identify the factors that related with four dimensions of quality of life in post-stroke patients used a survey analitic cross sectional design study. The research involved 40 post-stroke patients with using consecutive sampling. Respondents answered 26 questions of WHOQOL- Bref, 19 statements of BHS,5 statements of APGAR, they were tested by 10 questions of IBS.

The research shown a significant association between education level with environmental domain (p=0.004), clinical categorization with psychological domain (p=0.038), disability status with physical domain (p=0.039), environmental domain (p=0.009). Researcher recommends to perform further research with larger sampel size and specific research topics like the determinant factor that influences quality of life in post-stroke patients.While, the nursing services need to administer and modifiy nursing intervention for increasing the functional capability status of patient."

"Latar Belakang: Penderita penyakit ginjal kronik akan mengalami berbagai stressor dalam kehidupan sehari-hari yang dapat menurunkan kualitas hidupnya. Kualitas hidup yang buruk berkorelasi dengan peningkatan mortalitas dan morbiditas. Penelitian ini bertujuan untuk mengadaptasi kuesioner KDQOL-SF ke dalam bahasa Indonesia dan mengevaluasi reliabilitas dan validitas kuesioner pada subjek sehat di Indonesia.Metode: Kuesioner KDQOL-SF yang sudah diterjemahkan sebelumnya diberikan kepada 33 subjek sehat di RSUP Dr. Cipto Mangunkusumo. Responden berusia di atas 18 tahun dan mampu berbahasa Indonesia secara lisan dan tulisan. Reliabilitas diukur dengan menggunakan koefisien korelasi intraclass Alpha Cronbach dan reliabilitas konsistensi internal. Validitas dievaluasi menggunakan uji korelasi Pearson.Hasil: Dari 33 responden, mayoritas subjek berjenis kelamin laki-laki (81%) dengan rerata usia 47,4 13,7 tahun. Skor tertinggi pada aspek dukungan sosial dengan skor rata-rata 99,48 2,95, sedangkan skor terendah adalah aspek vitalitas dengan skor rata-rata 63,28 ± 11,61. Nilai Alpha Cronbach antara 0,580-0,999 dan koefisien korelasi Pearson antara 0,405 0,976 dengan P < 0,05.Kesimpulan: Kuesioner KDQOL-SF yang diterjemahkan ke dalam bahasa Indonesia valid dan reliabel untuk digunakan dalam menilai kualitas pasien sebelum transplantasi ginjal di Indonesia.

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Background: Patients with chronic kidney disease will endure various stressors in daily living which may decrease their quality of life. Poor quality of life correlates with increased mortality and morbidity. This research aims to adapt the KDQOL-SF questionnaire into Indonesian and to evaluate the reliability and validity of the questionnaire in healthy subjects in Indonesia.

Methods: Previously translated (into Indonesian) KDQOL-SF questionnaire was given to 33 healthy subjects at Dr. Cipto Mangunkusumo General Hospital. Respondents were over 18 years old and were able to speak Indonesian orally and in written form. Reliability was measured using Alpha Cronbach’s intraclass correlation coefficient and internal consistency reliability. Validity was evaluated using Pearson’s correlation test.

Results: Out of 33 respondents, majority of subjects were male (81%) with mean age 47.4 ± 13.7 years old. Highest score was in social support aspects with mean score 99.48 ± 2.95, while the lowest score was vitality aspect with mean score 63.28 ± 11.61. Alpha Cronbach’s score was between 0.580-0.999 and Pearson’s correlation coefficient between 0.405-0.976 with P <0.05.

Conclusions: KDQOL-SF questionnaire, which was translated into Indonesian, was valid and reliable to be used in evaluating patients’ quality of before kidney transplantation in Indonesia."

"Latar Belakang: Kanker kepala dan leher terdapat 10 dari keseluruhan kasus kanker di seluruh tubuh. Efek samping akibat terapi kanker berdampak signifikan pada kualitas hidup pasien. Instrumen yang sering digunakan untuk menilai kualitas hidup pasien kanker kepala dan leher salah satunya adalah University of Washington Quality of Life UW-QOL. Hingga saat ini belum pernah dilakukan adaptasi kuesioner UW-QOL ke bahasa Indonesia. Tujuan: Penelitian ini bertujuan mendapatkan instrumen UW-QOL adaptasi bahasa Indonesia yang valid dan reliabel untuk menilai kualitas hidup pasien kanker kepala dan leher. Metodologi: Penelitian ini berdesain potong lintang, dilakukan di poliklinik THT FKUI/RSCM dr. Cipto Mangunkusumo terhadap pasien kanker kepala dan leher usia dewasa. Hasil: Uji validitas menggunakan uji korelasi Spearman dengan korelasi bermakna pada seluruh butir pertanyaan di tingkat signifikansi p

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Background: Head and neck cancer accounts for 10 of all cancer cases throughout the body.. Side effects due to cancer therapy have a significant impact on patient quality of life. The University of Washington Quality of Life UW QOL is the most frequent intruments used to assess the quality of life of head and neck cancer patients. At present, the Indonesian version of UW QOL questionnaire is not available.

Objective: This study aims to obtain a valid and reliable Indonesian adaptation of UW QOL to assess the quality of life of head and neck cancer patients.

Method: Cross sectional study was conducted in ORL HNS Department outpatient clinic dr. Cipto Mangunkusumo hospital towards 41 adult patients with head and neck cancer.

Result: The validity test using Spearman correlation test with significant correlation in all questions items at the level of significance p"

"[ABSTRAKTujuan penelitian ini yaitu mengembangkan intervensi model adaptasi paska stroke serta mengidentifikasi efektifitasnya terhadap perilaku adaptasi dan kualitas hidup pasien paska stroke. Penelitian ini secara keseluruhan dilakukan dalam dua tahap. Tahap satu yaitu pengembangan model intervensi yang diawali dengan penelitian kualitatif menggunakan pendekatan fenomenologi deskriptif tentang pengalaman pasien beradaptasi paska stroke. Model intervensi kemudian dikembangkan dengan cara mengintegrasikan tema hasil penelitian kualitatif, studi literatur, dan konsultasi pakar. Tahap kedua yaitu uji coba intervensi model untuk menentukan efektifitasnya terhadap respon adaptasi dan kualitas hidup pasien paska stroke. Penelitian tahap dua merupakan penelitian kuasi eksperimen menggunakan desain post test control group. Metode sampling yang digunakan dalam penelitian tahap dua yaitu consecutive sampling dengan jumlah sampel 65 orang (32 orang kelompok intervensi dan 33 orang kelompok kontrol). Pembagian sampel ke dalam kelompok intervensi dan kontrol dilakukan dengan matching rumah sakit. Hasil penelitian tahap satu teridentifikasi 9 tema yang dinyatakan partisipan dan dihasilkan intervensi model adaptasi paska stroke (IMAPS) beserta perangkatnya meliputi buku panduan intervensi model, modul untuk perawat pelaksana, dan booklet untuk pasien dan keluarga. Hasil penelitian tahap dua membuktikan adanya perbedaan respon adaptasi fisiologis, adaptasi psikososial, dan kualitas hidup yang bermakna antara pengukuran 3 bulan dengan 4 bulan sesudah intervensi diantara kelompok intervensi dan kontrol. Kesimpulan hasil penelitian yaitu intervensi model adaptasi paska stroke efektif meningkatkan respon adaptasi fisiologis, adaptasi psikososial dan kualitas hidup paska stroke.;

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ABSTRACTThe purpose of this research was to develop intervention adaptation model for post-stroke (IMAPS) and identify its effectiveness on adaptation response and quality of life after stroke. This study conducted in two stages. The first stage was the development of intervention model that begins with a qualitative research using a descriptive phenomenological approach. Intervention model was then developed by integrating the results of qualitative research, literature review, and expert review. The second stage was examination the intervention model to identified its effectiveness on adaptation response and quality of life after stroke. This study was quasi-experimental research using post test control group design. The sampling method used in this study was consecutive sampling with a sample of 65 stroke patient (32 samples in intervention group and 33 samples in control group). Samples were allocated to intervention and control group by matching the hospital. The qualitative study identified nine theme stated by the participants. Qualitative themes serve as guidelines for developing intervention model. The first stage resulted in intervention model and its devices include intervention manual, module for nurses, and booklet for patients and their families. The second stage of research proves the significant difference in physiological and psychosocial adaptation response, and quality of life between measurements 3 months to 4 months after the intervention between groups. We conclude that IMAPS effectively improve the response of physiological and psychosocial adaptation, and quality of life after stroke;The purpose of this research was to develop intervention adaptation model for post-stroke (IMAPS) and identify its effectiveness on adaptation response and quality of life after stroke. This study conducted in two stages. The first stage was the development of intervention model that begins with a qualitative research using a descriptive phenomenological approach. Intervention model was then developed by integrating the results of qualitative research, literature review, and expert review. The second stage was examination the intervention model to identified its effectiveness on adaptation response and quality of life after stroke. This study was quasi-experimental research using post test control group design. The sampling method used in this study was consecutive sampling with a sample of 65 stroke patient (32 samples in intervention group and 33 samples in control group). Samples were allocated to intervention and control group by matching the hospital. The qualitative study identified nine theme stated by the participants. Qualitative themes serve as guidelines for developing intervention model. The first stage resulted in intervention model and its devices include intervention manual, module for nurses, and booklet for patients and their families. The second stage of research proves the significant difference in physiological and psychosocial adaptation response, and quality of life between measurements 3 months to 4 months after the intervention between groups. We conclude that IMAPS effectively improve the response of physiological and psychosocial adaptation, and quality of life after stroke, The purpose of this research was to develop intervention adaptation model for post-stroke (IMAPS) and identify its effectiveness on adaptation response and quality of life after stroke. This study conducted in two stages. The first stage was the development of intervention model that begins with a qualitative research using a descriptive phenomenological approach. Intervention model was then developed by integrating the results of qualitative research, literature review, and expert review. The second stage was examination the intervention model to identified its effectiveness on adaptation response and quality of life after stroke. This study was quasi-experimental research using post test control group design. The sampling method used in this study was consecutive sampling with a sample of 65 stroke patient (32 samples in intervention group and 33 samples in control group). Samples were allocated to intervention and control group by matching the hospital. The qualitative study identified nine theme stated by the participants. Qualitative themes serve as guidelines for developing intervention model. The first stage resulted in intervention model and its devices include intervention manual, module for nurses, and booklet for patients and their families. The second stage of research proves the significant difference in physiological and psychosocial adaptation response, and quality of life between measurements 3 months to 4 months after the intervention between groups. We conclude that IMAPS effectively improve the response of physiological and psychosocial adaptation, and quality of life after stroke]"