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"The hereditary retinopathy, retinitis pigmentosa (RP), which affects 1 in 3,500 people worldwide, is the most common cause of registered visual handicap among those of the working age in developed countries. RP is a highly variable disorder where patients may develop symptomatic visual loss in early childhood, while others may remain asymptomatic until mid-adulthood. "

"ABSTRAKCognitive Behavior Therapy CBT untuk Meningkatkan Illness Acceptance pada Pasien Retinitis Pigmentosa Latar Belakang Retinitis Pigmentosa RP adalah salah satu jenis penyakit retinal herediter yang bersifat degeneratif dan dapat berujung pada kebutaan total. Dampak kerusakan penglihatan pada RP dapat mempengaruhi berbagai aspek di dalam kehidupan penderitanya, baik itu fisik, psikologis maupun psikososial penderitanya. Pasien usia dewasa awal memiliki risiko yang lebih besar mengalami permasalahan psikologis sehubungan dengan adanya perubahan serta gangguan signifikan terhadap peran sosialnya. Di sisi lain, penerimaan individu terhadap penyakit dapat mengurangi reaksi dan emosi negatif terkait dengan penyakit dan penanganan medisnya. Penerimaan terhadap penyakit bermanfaat untuk membantu pasien dalam mengoptimalkan fungsi kesehariannya sehingga ia dapat beradaptasi dengan sisa fungsi penglihatannya dan dampak dari hendaya penglihatannya terhadap kehidupannya. Oleh karena itu, peneliti mencoba menjawab kebutuhan tersebut dengan memberikan Cognitive Behavior Therapy kepada 3 tiga orang penyandang Retinitis Pigmentosa. Desain Penelitian Penelitian dijalankan dengan menggunakan desain single subject design. Adapun intervensi CBT diberikan dalam 5 sesi. Hasil Partisipan mengalami peningkatan illness acceptance yang ditandai dengan perbaikan skor Illness Cognition Questionnaire ICQ pada subskala Acceptance maupun Helplessness. Kata kunci: Illness acceptance, retinitis pigmentosa, low vision, dewasa awal, cognitive behavioral therapy.

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ABSTRACTCognitive Behavior Therapy CBT to Increase Illness Acceptance in Adult Retinitis Pigmentosa Patients Background Retinitis pigmentosa RP is a slowly progressive loss of vision which eventually leads to bare or no light perception, posing a continuous threat to patients 39 independence. Negative psychological states such as distress, sleepiness, anxiety and depression are common in RP patients due to the nature of this chronic, disabling illness. Young adults with RP present unique challenges and more prone to psychological problems because of their significant change in many areas of their life, such as working life and care giving roles that inevitably be compromised. Within coping strategy to deal with this disabling illness, acceptance is considered a key variable. When patients accept the disease, it is assumed that they will adjust their life goals towards more achievable goals by integrating this difficult life event. In this research, the researcher provide Cognitive Behavior Therapy for three RP patients. Design With single subjet design, this research aims to find out the effectivity of 5 sessions CBT to improve the illness acceptance of RP patients. Result Improvement was found for all variables in two subscales of Illness Cognition Questionnaire. Qualitatively, it is also found that CBT helps the patient to unconditionally accept themselves, have more positive thoughts towards their illness, and learn how to cope more effectively. "

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