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"Penelitian ini menjelaskan mengenai peran perawat, serta bentuk dukungan sosial yang dilakukan kepada anak penyandang cacat ganda di Wisma Tuna Ganda Palsigunung. Penelitian ini adalah penelitian kualitatif dengan desain deskriptif. Di dalam penelitian ini di jelaskan bahwa peran perawat dalam memberikan dukungan sosial. Selain itu penelitian ini juga melihat bentuk-bentuk dukungan sosial. Dan juga memperhatikan dampak negatif dan juga manfaat dari pemberian dukungan sosial. Dukungan sosial tersebut dilakukan oleh pimpinan, kepala bagian rehabilitasi, kepala bagian keperawatan, perawatan, dan juga kepala bagian fisioterapi yang sering berinteraksi terhadap anak-anak asuh. Selain itu terdapat pula hambatan yang muncul dalam pemberian dukungan sosial tersebut.

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This study describes the role of nurses, as well as forms of social support to children with disabilities do double at Wisma Tuna Ganda Palsigunung. This study is a descriptive qualitative research design. In this study explained that the role of nurses in providing social support. In addition this study also looked at other forms of social support. And also pay attention to the negative impact and also benefits from the provision of social support. Social support is done by the leader, head of rehabilitation, head of nursing, care, and also head of the physiotherapy department who often interact to foster children. In addition there are also obstacles that arise in the provision of social support."

"[Penelitian ini menjelaskan mengenai media terapi permainan, serta fungsi media yang digunakan dalam terapi permainan pada anak tuna ganda di Wisma Tuna Ganda Palsigunung. Penelitian ini adalah penelitian kualitatif dengan desain deskriptif. Hasil penelitian mengungkapkan bahwa terapi permainan merupakan terapi menggunakan alat bantu permainan yang mengandung nilai pendidikan(edukasi) dan dapat merangsang seluruh aspek kemampuan (potensi) anak, yaitu: aspek motorik, aspek bahasa, aspek kognitif, dan aspek sosial. Terapi permainan tersebut diberikan kepada anak-anak tuna ganda dengan bimbingan para terapis.;This study describes media play therapy, and functions of the media used in the play therapy to children with multiple disabilities in Wisma Tuna Ganda Palsigunung. This study is a qualitative research with a descriptive design. Results of the study shows that the game therapy is the therapeutic use of tools that the game contains the value of education and can stimulate all aspects of capability (potential) children, such as: motoric aspects, aspects of language, cognitive aspects, and social aspects. The play therapy given to children with multiple disabilities with the guidance of the therapist.;This study describes media play therapy, and functions of the media used in the play therapy to children with multiple disabilities in Wisma Tuna Ganda Palsigunung. This study is a qualitative research with a descriptive design. Results of the study shows that the game therapy is the therapeutic use of tools that the game contains the value of education and can stimulate all aspects of capability (potential) children, such as: motoric aspects, aspects of language, cognitive aspects, and social aspects. The play therapy given to children with multiple disabilities with the guidance of the therapist.;This study describes media play therapy, and functions of the media used in the play therapy to children with multiple disabilities in Wisma Tuna Ganda Palsigunung. This study is a qualitative research with a descriptive design. Results of the study shows that the game therapy is the therapeutic use of tools that the game contains the value of education and can stimulate all aspects of capability (potential) children, such as: motoric aspects, aspects of language, cognitive aspects, and social aspects. The play therapy given to children with multiple disabilities with the guidance of the therapist.;;This study describes media play therapy, and functions of the media used in the play therapy to children with multiple disabilities in Wisma Tuna Ganda Palsigunung. This study is a qualitative research with a descriptive design. Results of the study shows that the game therapy is the therapeutic use of tools that the game contains the value of education and can stimulate all aspects of capability (potential) children, such as: motoric aspects, aspects of language, cognitive aspects, and social aspects. The play therapy given to children with multiple disabilities with the guidance of the therapist.;, This study describes media play therapy, and functions of the media used in the play therapy to children with multiple disabilities in Wisma Tuna Ganda Palsigunung. This study is a qualitative research with a descriptive design. Results of the study shows that the game therapy is the therapeutic use of tools that the game contains the value of education and can stimulate all aspects of capability (potential) children, such as: motoric aspects, aspects of language, cognitive aspects, and social aspects. The play therapy given to children with multiple disabilities with the guidance of the therapist.]"

"ABSTRAKStudi constructivist grounded theory ini bertujuan untuk mengembangkanpemahaman mengenai perspektif orang tua dan guru mengenai kelas tari khususpenyandang Down syndrome di Gigi Art of Dance berdasarkan pengalaman mereka.Walau kelas tersebut terbukti menyediakan banyak kesempatan bagi para murid ini, iajuga memiliki makna yang signifikan bagi orang tua dan guru yang terlibat. Berdasarkanobservasi partisipan selama tiga bulan, delapan wawancara mendalam dan memo writing,studi ini berhasil menemukan tiga kategori emergent: ?Mewujudkan Rumah?,?Menginginkan Anak Bersosialisasi? dan ?Mengubah Persepsi?. Hasilnya berkontribusiterhadap manfaat kegiatan seni, khususnya tari, bagi orang tua dan guru penyandangDown syndrome. Ditambah lagi, studi ini menggarisbawahi pentingnya memperhitungkanpengalaman partisipan dalam memahami proses konstruksi makna. Yang terakhir, iamenunjukan penggunaan dari constructivist grounded theory yang sebelumnya mungkinjarang dihubungkan dengan metode tersebut

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ABSTRACTThis constructivist grounded theory study aims to develop a deeper understandingof parents and dance teacher?s perspectives on Down syndrome dance class in Gigi Art ofDance based on their experiences. Although the class itself proves to provide greatopportunities for these students, it also means a great deal for the parents and teacherinvolved. Drawing on three months of participant observation, eight in-depth interviewsand memo writing, this study manages to reveal three emergent categories: ?Realizing aHome?, ?Wanting the Children to Socialize? and ?Changing the Perception?. The resultscontribute to the benefits of the arts, particularly dance, for parents and teachers of peoplewith Down syndrome. In addition, this study highlights the importance of accounting forparticipants? experiences in understanding the process of meaning construction. Finally, itdemonstrates the use of constructivist grounded theory in the field of communications,which might be rarely associated with the method before;"

"Jumlah penderita gangguan mental di negara berkembang seperti Indonesia mengalami peningkatan dari tahun ke tahun. Survei Badan Pusat Statistik (BPS) menyebutkan bahwa pada tahun 2006, dari 222 juta penduduk Indonesia, sebanyak 0.7% atau berkisar 2,8 juta merupakan penyandang cacat. Dari beberapa penelitian menyebutkan bahwa orang tua yang memiliki anak dengan penyandang cacat seperti retardasi mental, menelantarkannya atau menempatkannya di Panti Sosial. Penelitian ini bertujuan untuk mengetahui gambaran tingkat pengetahuan dan sikap pengasuh terkait retardasi mental. Disain penelitian ini adalah deskriptif menggunakan sampel semua pengasuh di wisma tuna ganda Palsigunung dengan menggunakan teknik total sampling.Hasil penelitian ini menunjukan bahwa tingkat pengetahuan pengasuh dan sikap pengasuh terkait retardasi mental tergolong tinggi. Penelitian ini memberikan gambaran kepada FIK UI untuk terkait mata kuliah keperawatan jiwa serta terhadap yayasan Palsigunung terkait pengetahuan pengasuh dan sikap pengasuh dalam memberikan pelayanan kepada anak asuh.

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The number of people with mental disorders in developing countries such as Indonesia is increasing year after year. The survey of Badan Pusat Statistik (BPS) showed that in 2006, of Indonesia?s population of 222 million, 0,7% or approximately 2,8 million of them are categorized as mentally disabled. Some studies and research showed that patents who have children with disabilities such as mental retardation abandon or put them in Social Institution. This study aims to describe the level of knowledge and attitudes of the caregivers relating to mental retardation in Wisma Tuna Ganda Palsigunung. The design of this study is descriptive research with samples of all caregivers in Wisma Tuna Ganda Palsigunung (N = 32) by using total sampling technique.

The result of this study indicates that the levels of caregiver?s knowledge and attitude related to the mental retardation are high. This study gives an overview to FIK UI for the course of Psychiatric Nursing, and as well to the Palsigunung Foundation in the matter of caregiver?s knowledge and attitude in providing care to the children."

"ABSTRAKPengasuh yang merawat individu yang memiliki tuna ganda kemungkinan akan mengalami stress yang dipengaruhi oleh karakteristik pengasuh dan individu yang diasuh. Pengasuh harus menggunakan mekanisme koping yang adaptif untukmengatasi stres agar perawatan yang tepat dapat diberikan kepada individu yangmemiliki tuna ganda. Penelitian ini bertujuan mengetahui hubungan karakteristikpengasuh dengan mekanisme koping pengasuh di Wisma Tuna Ganda Palsigunung. Penelitian ini menggunakan desain penelitian cross sectional. Sampel penelitian adalah pengasuh yang berjumlah 30 orang dengan menggunakan teknik total sampling. Hasil penelitian menunjukkan karakteristik (usia, jenis kelamin, status perkawinan, tingkat pendidikan, dan lama kerja) tidak memiliki hubungan yangsignifikan dengan mekanisme koping pengasuh. Mayoritas pengasuh menggunakan mekanisme koping maladaptif. Peneliti merekomendasikan kepada pihak Wisma Tuna Ganda Palsigunung untuk melanjutkan pertemuan rutin satu kali sebulan dalam kelompok yang kecil dan menggunakan metode yang berbeda setiap pertemuan, agar pengasuh dapat lebih terbuka mengenai masalah yang dihadapi kepada lingkungansekitar

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ABSTRACTAs the caregivers of individuals who have multiple disabilities, stress may occur tomost of the caregivers that triggered by factors the individual that given care and thecharacteristic of the caregiver. Caregivers should use adaptive coping mechanisms tocope stress so that appropriate treatment can be given to individuals who havemultiple disabilities. This research aims to determine the relationship betweencaregivers characteristic and caregivers coping mechanism in Wisma Tuna GandaPalsigunung. The research using cross sectional study design. The research used totalsampling method and the total of the sample is 30 caregivers. The outcome of thisresearch showed that the characteristics (age, sex, marital status, educationalbackground, and length of employment), does not have a significant relation with thecoping mechanism that used by the caregiver. Majority of caregivers usingmaladaptive coping mechanism. Based on that outcome, it is highly recommended forTuna Ganda Palsigunung to continue a routine meeting once a month in a small grup every meeting, and using the different method every meeting. So that the caregivercan be more open about the problem to around."

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Skripsi ini membahas mengenai aspek intimasi yang terjalin di dalam proses perawatan penyandang disabilitas ganda oleh pengasuh.  Profesi pengasuh disabilitas ganda dilihat sebagai profesi yang beresiko serta memiliki beban fisik dan mental. Penelitian ini menggunakan metode kualitatif, yaitu melalui observasi dan wawancara mendalam oleh empat orang pengasuh. Hasil penelitian menunjukkan bahwa, profesi pengasuh disabilitas bukan hanya dilihat sebagai pekerjaan yang memiliki resiko, beban fisik, dan mental saja, upah minim juga harus mereka terima dalam menekuni pekerjaan mereka. Kondisi tersebut juga berdampak pada kehidupan pribadi pengasuh di luar pekerjaan mereka. Namun, meski pengasuh dihadapkan dengan berbagai macam kondisi sulit, tidak membuat mereka meninggalkan pekerjaan mereka. Para pengasuh justru melakukan berbagai macam strategi koping sebagai upaya untuk tetap bertahan menajalani profesi pengasuh bagi penyandang disabilitas ganda. Alasan pengasuh untuk bertahan dari profesi mereka dilatar belakangi oleh keinginan pribadi para pengasuh, yaitu berupa rasa nyaman dan aman ketika berada di lingkungan wisma, menjadikan wisma sebagai tempat belajar dan memperbaiki kualitas hidup, serta tempat untuk beribadah dan mengumpulkan pahala. Selain itu, pada prosesnya, profesi ini juga melibatkan aspek intimasi yang terjalin antara pengasuh dengan penyandang disabilitas ganda. Aspek intimasi tersebut diantaranya, sentuhan atau kontak fisik, kedekatan atau keakraban, afeksi, serta pengetahuan yang bersifat pribadi. Sehingga profesi pengasuh disabilitas ganda dapat dikategorikan sebagai intimate labor.

 

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This thesis discusses the aspects of intimacy that are interwine in the process of caring for people with multiple disabilities by caregivers. The caregiver profession is seen as a risky profession and has a physical and mental burden. This study uses qualitative methods, namely through observation and in-depth interviews with four caregivers. The results showed that, the profession of disability caregivers was not only seen as occupations that had risks, physical and mental burdens, they also had to receive a minimum wage in pursuing their work. This condition also affects the caregivers personal life outside their work. However, even though caregivers are faced with a variety of difficult conditions, it does not make them leave their jobs. The caregivers do a variety of coping strategies in order to endure the caregiver profession for people with multiple disabilities. The caregivers reason for surviving their profession is motivated by the personal desires of the caregivers, namely in the form of a sense of comfort and safety when in the guesthouse environment, making the guesthouse as a place to learn and improve quality of life, as well as a place to worship and gain merit. In addition, during the process, this profession also involves aspects of intimacy that exist between caregivers and people with multiple disabilities. These aspects of intimacy include physical touch or contact, closeness or intimacy, affection, and personal knowledge. So that the profession of multiple disability caregivers can be categorized as an intimate labor.

Keywords: Aspects of intimacy, caregivers of multiple disabilities, coping strategies.

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"ABSTRAKRetardasi mental merupakan salah satu gangguan mental di Indonesia, yang memunculkan stigma negatif di masyarakat sehingga orangtua menelantarkan atau menitipkan anaknya ke panti sosial. Pengasuh di panti sosial memerlukan pengetahuan mengenai retardasi mental, motivasi tinggi dalam bekerja, dan sikap positif. Penelitian ini bertujuan untuk mengetahui hubungan antara tingkat pengetahuan dan motivasi dengan sikap pengasuh. Penelitian dilakukan dengan menggunakan desain deskriptif-analitik dengan pendekatan cross-sectional. Sampel pada penelitian ini berjumlah 28 orang yang dipilih dengan menggunakan teknik total sampling. Hasil penelitian dianalisis dengan menggunakan uji Fisher rsquo;s Exact dan memperlihatkan tidak ada hubungan antara tingkat pengetahuan dengan sikap pengasuh p=1,00 dan ?=0,05 . Hasil penelitian juga memperlihatkan ada hubungan antara motivasi dengan sikap pengasuh p=0,020 dan ?=0,05 . Dari hasil tersebut, maka diperlukan pelatihan untuk meningkatkan pengetahuan, motivasi, dan sikap pengasuh yang positif terhadap pasien retardasi mental. Peran perawat diperlukan dalam memberikan asuhan keperawatan, sharing ilmu, dan memberikan pelatihan untuk pengasuh.

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ABSTRACTMental retardation is one of the most leading mental disorders in Indonesia that has increase many negative stigmas in the community so that parents tend to neglect or put his son to the workhoses. Caregivers in workhouses need knowledge about mental retardation, high motivation in working, and positive attitude. This research aims to know the relatonship between the level of knowledge and motivation with caregivers attitude. This study use descriptive analytic method with cross sectional approach. These samples included 28 individuals who have been selected with a total sampling technique. The result are analyzed using Fisher rsquo s Exact Test and showed no relationship between the level of knowledge with caregiver attitude p 1,00 dan 0,05 . The other result showed there is a relationship between motivation with caregivers attitude p 0,020 dan 0,05 . From the result, then the necessary training to increase knowledge, motivation, and attitude possitive towards caregivers of patient with mental retardation. The role of nurse are providing the required nursing care, sharing knowledge, and provide training for caregivers."