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"Anak dengan penyakit kronik sering mengalami gangguan rasa nyaman akibat perjalanan penyakit, pemeriksaan diagnostik dan proses pengobatan, sehingga membutuhkan asuhan keperawatan yang tepat. Karya Ilmiah Akhir ini disusun dengan tujuan untuk menggambarkan aplikasi Theory of Unpleasant Symptoms (TOUS) pada anak dengan penyakit kronik yang mengalami gangguan rasa nyaman serta menganalisis keefektifannya. TOUS memiliki tiga komponen yaitu gejala, faktor yang mempengaruhi dan performance akhir klien. Ketiganya dapat saling mempengaruhi dan dapat diintegrasikan dalam asuhan keperawatan anak. TOUS dapat diaplikasikan pada asuhan keperawatan anak penyakit kronik dengan gangguan rasa nyaman karena melalui manajemen gejala berbasis TOUS, kebutuhan rasa nyaman anak akan terpenuhi meski gejala tak menyenangkan masih muncul. Aplikasi TOUS pada asuhan keperawatan anak hendaknya memperhatikan aspek tumbuh kembang dan aspek psikologis anak. Saat mengaplikasikan konsep TOUS, Ners spesialis telah dapat melakukan berbagai peran diantaranya sebagai praktisi, edukator, kolaborator, peneliti serta advokat bagi klien dan keluarga.

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Chronically ill children often experience uncomfortable issue due to the disease pathophysiology, the diagnostic examination and medication process, so the child needs proper nursing care. This Scientific Final Assignment was arranged to describe the application of Theory of Unpleasant Symptoms (TOUS) to chronically ill children who have uncomfortable issues and also to analyze its effectiveness. TOUS has three main components which are symptoms, influencing factors and performance outcomes. Those three components influence each other and can be integrated in pediatric nursing process. TOUS can be applied in chronically ill children nursing process especially child with uncomfortable issue because through symptoms management based on TOUS, the comfort need of children can be fulfilled even the unpleasant symptoms still occur. The application of TOUS should pay attention to growth and development aspects of the children and also to the psychological aspect. When the specialist pediatric nurse applied TOUS concept, the nurse has done many role such as nurse practitioner, educator, collaborator, researcher and advocate for client and the family. "

"This book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts."

"Penelitian ini bertujuan mengetahui pengaruh terapi kelompok suportif terhadap kemampuan keluarga merawat anak tunagrahita di SLB-C Kabupaten Cianjur. Penelitian ini menggunakan desain quasi eksperimen dengan pendekatan pre post tes dengan grup kontrol. Responden penelitian adalah keluarga dengan anak tunagrahita, 60 keluarga anak tunagrahita, terdiri atas 30 keluarga kelompok intervensi dan 30 keluarga kelompok kontrol. Kemampuan keluarga merawat anak tunagrahita yang mendapatkan terapi kelompok suportif lebih tinggi dibandingkan dengan kelompok yang tidak mendapat terapi kelompok suportif. Kemampuan keluarga setelah di kontrol dengan faktor confounding didapatkan peningkatan mean namun tidak signifikan. Artinya peningkatan kemampuan keluarga disebabkan karena intervensi yang dilakukan bukan dari faktor confounding. Disarankan terapi kelompok suportif digunakan sebagai terapi kelompok dalam meningkatkan kemampuan keluarga dalam merawat anak tunagrahita.

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Thepurpode of their research use to identify the effects of group supportive therapy to wording the family ability to take the family in caring for children Tunagrahita in SLB-C Cianjur Regency. This research utilized quasi experimental design using pre and post test with control group.The respondents consist of family in caring for children tunagrahita,sixty families were divided inti 2 groups; 30 families as experimental group and 30 families as control group. The research result demonstrated that the the families who recewed supportive group therapy showed that higer ability as composed to families without supportive group therapy.The family ability after being controlled by counfounding factors showed the improvement of mean but not significant. This weart that the family ability was only effected by the intervention not by the counfounding factors. It was recommended the supportive group therapy would be utilited of group therapy in inproving family ability to case for the family with caring for children."

"Menurut World Health Ranking 2020, kematian epilepsi di Indonesia mencapai 706 orang dari total kematian dan menempatkan Indonesia pada peringkat 183 di dunia. Kualitas hidup pasien epilepsi dipengaruhi oleh beberapa faktor. Penelitian ini bertujuan mengidentifikasi faktor-faktor yang berhubungan dengan kualitas hidup anak epilepsi. Menggunakan metode cross sectional dengan accidental sampling dan didapatkan 94 responden, yaitu orang tua anak epilepsi berumur 4-18 tahun. Uji yang digunakan adalah Chi Square dengan Quality of Life in Childhood Epilepsy Questionner (QOLCE-16). Hasil penelitian menunjukan rata-rata nilai QOLCE-16 anak epilepsi adalah 42.25 dimana 52.1% anak memiliki kualitas hidup buruk. Faktor yang berhubungan dengan kualitas hidup anak epilepsi, yaitu usia orang tua, tingkat pendidikan orang tua, status pendidikan anak, lama pengobatan, frekuensi kejang, jenis OAE, dan durasi epilepsi. Hasil penelitian ini dapat dijadikan rujukan dalam pengembangan pengkajian keperawatan pada pasien epilepsi terkait kualitas hidup.

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According to the 2020 World Health Ranking, Indonesia ranked 183rd with 706 epilepsy-related fatalities out of total deaths. Various factors impact the life quality experienced by those with epilepsy. Finding the variables affecting children with epilepsy's life quality is the goal of this study. 94 parents of children with epilepsy between the ages of 4 and 18 were selected from the population using an unintentional sampling technique. Chi Square with Life quality in Childhood Epilepsy Questionner (QOLCE-16) was the test utilized. The study finds 52.1% of children with epilepsy reported a low life quality, with an average QOLCE-16 score of 42.25. AED type, length of therapy, frequency of seizures, length of parental education, and length of epilepsy are all factors that affect the life quality for children with epilepsy. These findings can be referenced when creating life quality nursing assessments for patients with epilepsy."